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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
07-20-2005, 05:49 AM
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I just wanted to let everyone know that Alli is absolutely thriving with the trach back in place. She sleeps so much better, doesn't labor to breathe even when excited or exerted, and has a nice, healthy pink look we have missed for a while. Even her overnight feeding is going better, with no intolerance issues. We havent weighrd but it feels like she may even be gaining some weight! We did love being trachless, BUT it's not worth it just in and of itself. Having the trach and being healthy is so much more desirable.
 There are a few new photos on her webpage (see my signature) Hugs to all, Deb
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Grateful thorns have roses 24 weeker now almost 11 years old and in third grade! trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08 [IMG] [IMG] 
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#2
07-20-2005, 06:02 AM
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Deb, How wonderful! I am so happy that Alli is thriving and not struggling to take every breathe.
Thank you for the update; I have been thinking about her.  Amanda P.S. She is growing into such a beautiful young lady.
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Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube. 
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#3
07-20-2005, 06:06 AM
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Deb,
Alli looks great! I'm glad to hear things are easier for her and she is doing much better! Lora
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Lora - Mom to Zoe (12/26/04), former 27 weeker, BVCP, Subglottic Stenosis, mild reflux, g-tube http://www.caringbridge.org/visit/zoeglasel
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#4
07-20-2005, 07:59 AM
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Great news Deb! A trach is a wonderful thing when it's so needed. I'm glad to hear that Alli is thriving, been thinking about you guys and hoping for the best
 Blessings, Dawna
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Dawna, Mom to Tristan 6 yrs, former 22wk preemie with trach (decanned 6/20/07!!), Josh 25, Jenna 21, Gracie 14, and Jon 11. Photography website: http://pricelessmemoriesphoto.com/ 
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#5
07-20-2005, 08:13 AM
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I'm so glad Ali is not struggling to breathe and is feeling better. Her pictures are beautiful, as usual.
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Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.  B & C are surviving triplets. Brooke survived for 1 month.
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#6
07-20-2005, 11:29 AM
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I am so happy hearing that she is breathing better. I loved the pictures!!
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Leslie, mother to Chris (12), Chase (3) and Chad (2) I have 3 boys cause I didn't want 4. Chase- X 31 weeker, Trachea Esophageal Fistula, Esophageal Atresia, Pyloric Stenosis, VSD, Pulmonary Stenosis, Severe malacia (90% occlusion)..one failed decann attempt
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#7
07-20-2005, 11:44 AM
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That is GOOD NEWS
 because if you are struggling to breathe, you can't live your life. Now you and Ali can get some fun summertime partying in! Happy to hear she is gaining weight too!Janet
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Janet, mom to McKenna (5) and Randy (21). McKenna, currently speaking in tongues at a rate of 80 gibberings per minute driving her parents, sibling into a happy state of dazed insanity! Trached at 2 months d/t lymphangioma
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#8
07-20-2005, 01:55 PM
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What a relief for Alli. I am glad she is feeling better.
She reminds me of Julia Roberts! Kerry
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002). Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!  The Birthday Boys by TwinTransfusion, on Flickr
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#9
07-20-2005, 02:11 PM
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Deb
Thanks for the update. I am glad Alli is feeling better thanks to the trach. I am sure you are relieved things are settling down a little. Hugs to Alli for being such a trooper! Whitney
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 Mom to twin boys, Alexander and Aidan born on April 1st, 2003. They are former 25-weekers. Alex was trached from 10-03 to 4-05. Also mom to my lovely new daughter Amelia born August 19th, 2011!
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#10
07-20-2005, 06:21 PM
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Thanks for the update! So glad Alli is doing well! What can you say? When you need the trach, you need the trach. It's a real safety net for us as parents too!
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Melisande H. Mother to The Preeminent Grand Poohba Donovan (5/27/03), still some "resolving" apnea, on the autism spectrum and some cerebellar malformations. Trached since he was 6 weeks old. Recently DECANNULATED 4/16/09!! Big brother to Conrad! 
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