Welcome! I think you will find that there are more people (with and without vents) who hang out on the pediatric trach board. You might post there.
Been there, done that with the spells. Sounds like your child has airway issues, which mine does not, which has made figuring out the "spells" even more interesting (but that's another story). I know of others who've had similar symptoms, however. My son had high CO2 levels and they think that the spells are related to that. He had 7-12 a day when we left the hospital at 3 mo. of age. They were much shorter with the trach and we could actually sort of bag him. He's better now that he's 2, but still has about one a week. Makes for a fun bathtime with a trached kid having a spell while you're trying to rinse his hair! He recovers very quickly now and we don't bag him unless they go too long.
Good luck and welcome. You've found a neat group of very informed, caring parents here. You've come to the right place.
Melisande H. Mother to The Preeminent Grand Poohba Donovan (5/27/03), still some "resolving" apnea, on the autism spectrum and some cerebellar malformations. Trached since he was 6 weeks old. Recently DECANNULATED 4/16/09!! Big brother to Conrad!