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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
07-08-2005, 11:20 AM
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Well, Alli is still working too hard to breathe, especially at night, so she will be getting her trach placed again around 3 :30 this afternoon. Â*I'll update as able. Â*We dont expect any complications. Â*Hugs Deb
ps At the dr's office this morning we asked Alli if she remembered the trach and she said "yeah" and touched her throat. We asked if she thought she would breathe easier if it was put back in and she touched it again and said "yeah." I tested her by asking if she has puppies in her ears and she said "no" so we think she understood. Deb
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Grateful thorns have roses 24 weeker now almost 11 years old and in third grade! trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08 [IMG] [IMG] 
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#2
07-08-2005, 11:41 AM
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How stressful for you, Deb
 I hope everything goes smoothly, and that Alli is able to breathe easier after getting the trach... good luck!
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#3
07-08-2005, 11:42 AM
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Deb, ((((HUGS)))) We know you are going to need them. I will be praying for the best and no complications. You are a wonderful mother and Alli is very lucky to have you.
 Amanda
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Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube. 
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#4
07-08-2005, 11:45 AM
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oh, Deb. I'm sorry that Alli has to deal with this. It sounds like you are okay with it??? Prayers for an easy surgery and recovery. Lots of love . . . Barb
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Mom to Bobby, born 10-03, Beckwith-Weidemann Syndrome, trached December 03 due to macroglossia (enlarged tongue) causing upper airway obstruction. Also Mom to Audrey (13) Maddy (11) and Billy (9). Bobby was DECANNULATED 8-17-04 (8months and 1 day with the trach).
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#5
07-08-2005, 11:46 AM
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Deb
Well we all realize you do what must be done. You all certainly put up a great fight. If a trach will help her breathe, then it's the best choice. I hope your surgery goes well and hopefully 3rd times the charm!! Best wishes to Alli, Whitney
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 Mom to twin boys, Alexander and Aidan born on April 1st, 2003. They are former 25-weekers. Alex was trached from 10-03 to 4-05. Also mom to my lovely new daughter Amelia born August 19th, 2011!
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#6
07-08-2005, 11:54 AM
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Our hearts go out to you all....but you gotta do what you gotta do. It is amazing how strong our little ones are...and us as parents, even when we didn't think we could be so strong.
In the end, Ali will be happier being able to breathe easily. And we will pray for more guidance and answers for what the future holds. Hang in there and keep us posted, Michelle
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Michelle, Marisa's Mom, 27 week preemie, trached from 11/03 - 9/04 for severe subglottic stenosis, LTP 9/04, right hemiplegia (Grade IV left IVH/PVL), survivor and my hero with the most beautiful smile! http://www.freewebs.com/marisanicole
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#7
07-08-2005, 01:14 PM
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You guys hang in there and keep us posted when you can! You are in my prayers today! Hope Alli feels better soon
 Dawna
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Dawna, Mom to Tristan 6 yrs, former 22wk preemie with trach (decanned 6/20/07!!), Josh 25, Jenna 21, Gracie 14, and Jon 11. Photography website: http://pricelessmemoriesphoto.com/ 
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#8
07-08-2005, 01:25 PM
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i hope that all goes well, keep us posted. i know it must be hard to watch her struggle to breath, so i hope this will allow her time to grow and the next decannulation will be permanate. you are in our prayers.
mom to anthony 23 month old CHargEr
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#9
07-08-2005, 01:28 PM
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I'm sorry that Ali needs the trach again, but you are doing what is needed. I hope your beautiful girl starts feeling better soon! Lots of prayers!
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Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.  B & C are surviving triplets. Brooke survived for 1 month.
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#10
07-08-2005, 01:35 PM
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Hugs and Prayers coming your way. I am sure everything will go smooth.
Jarita
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Doug, father of Mason. Hemangeoma in Trachea. Had Tracheostomy 5-14-2004 at 4 months of age. Decanned 8-19-05. Closure Surgery 5-5-06.
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