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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
07-06-2005, 08:53 AM
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Erin (Sara's Mom),
You did go to see Dr. Cotton last month, right? We need an update on Miss Sara! How are things going? She's such a little spitfire! I'm sure she's keeping you busy!
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Melisande H. Mother to The Preeminent Grand Poohba Donovan (5/27/03), still some "resolving" apnea, on the autism spectrum and some cerebellar malformations. Trached since he was 6 weeks old. Recently DECANNULATED 4/16/09!! Big brother to Conrad! 
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#2
07-06-2005, 12:01 PM
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Thanks for checking in, Melisande!
I'm not sure why, just haven't been on the board much lately...We are leaving for Cinci on the 18th. Surgery is on the 20th. It is scheduled as a single stage LTP, although I'm not so sure I believe that's what they'll do. You know me, the eternal optimist!  Just hard to believe we could truly be nearing the end of life with a trach after so many failed surgeries. I'm starting to feel a little anxious. Sara starts preschool in September. If things go as planned, we'll be getting home just in time for school. Otherwise, I'll be coming home to get fingerprinted and TB tested so I can go to school with her every day. (She'll be in private preschool, so no nurse to go with her.) I've been day dreaming of getting a part time job lately. Thanks for thinking of us and I'll be sure to check in from Cincinnati. I'll be bringing the laptop this time, so it will be easier to keep in touch! Wish us luck! Erin
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Mom to Sara 10/23/2000 - trach, congenital subglottic stenosis, laryngeal web, LTP 04/03, eosinophilic esophagitis, Â 2nd LTP 7/20/05 decannulated 7/28/05, retrached 8/25/05, decannulated again 11/11/05!
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#3
07-06-2005, 12:42 PM
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Hey Erin, I have been thinking about you too! I'm glad things are going well. I will be praying for a successful surgery and hoping that decannulation is not just a dream.
I know I've told you this before, but it was so nice to meet you and I miss everyone so much, including you and Sara. I had a great time in AZ. (((HUGS))) Amanda
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Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube. 
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#4
07-06-2005, 03:41 PM
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Erin,
I'm glad things are going well. Please get in touch when you get in town. We'll have to find something fun to do! Jennie
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Mommy to Hannah 8/2/03: fmr 25-weeker, trached 11/03 for subglottic stenosis, LTP 4/05, CTR 4/06, LTP 1/07. Decannulated 1/19/2007!! Gearing up for reconstruction #4; Also Mom to Brianna, 2/22/98: fmr 24-weeker, a little dramaqueen. My amazing gifts.
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#5
07-06-2005, 04:24 PM
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Erin,
Well, I was off by a month. I was wondering about you guys! I think of you everytime I put on our weekender's t-Shirt! You'll have to let us know how it goes. We'll keep you in our thoughts! 
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Melisande H. Mother to The Preeminent Grand Poohba Donovan (5/27/03), still some "resolving" apnea, on the autism spectrum and some cerebellar malformations. Trached since he was 6 weeks old. Recently DECANNULATED 4/16/09!! Big brother to Conrad!
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#6
07-06-2005, 10:49 PM
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Erin
I have been thinking about you and Sara!! I wish you nothing but the best and may decannulation be in Sara's near future! Best wishes, Whitney
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 Mom to twin boys, Alexander and Aidan born on April 1st, 2003. They are former 25-weekers. Alex was trached from 10-03 to 4-05. Also mom to my lovely new daughter Amelia born August 19th, 2011!
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