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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

06-30-2005, 08:52 PM
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Member
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Join Date: Sep 2004
Location: California
Posts: 138
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My son just saw his ENT yesterday and he still is having fluid behind his ears. They want to put ear tubes in. You think by now with all the medical procedures my kids have had nothing would phase me.
Does anyone have any negative experience with them? How easily can they fall out? Connor has two very active sisters who like to play with their little/big brother.
These are question that should have been asked to the Dr. however I was unable to make his appt. Plus I would rather hear from a parent then a Dr.
TIA,
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Amy
Mom to 25 weekers, Chloe, Gwynne- g-tube, nissen & Connor-trach/vent dependent, CP. atrophy of the brain, severe nuerological issues, g-tube & nissen
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06-30-2005, 09:16 PM
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Mentor
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Join Date: May 2003
Location: Atlanta, GA
Posts: 4,469
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Jacob has had ear tubes for 2 1/2 years and they have never fallen out. From what I can remember, Jacob's ENT said that the type he has are the more permanent type - whatever that means.
Anyways, best wishes and good luck w/everything.
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Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube.
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06-30-2005, 10:59 PM
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Senior Member
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Join Date: Jun 2005
Posts: 2,879
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As a parent to many medically fragile foster/adopted children, we have many sets of tubes in different kiddos with different problems. The only major coplication in any of our guys was with our son that has hemophilia (free bleeder). His ears bled (oozed) for about 6 weeks afterward. His was a unique case. We have been pleased with the results every time. I have heard others that have had problems with the tubes dislodging earlier than they should. I don't think that it is activity related. Hope that helps.
Dawna
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Dawna, Mom to Tristan 6 yrs, former 22wk preemie with trach (decanned 6/20/07!!), Josh 25, Jenna 21, Gracie 14, and Jon 11.
Photography website: http://pricelessmemoriesphoto.com/
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07-01-2005, 05:32 AM
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Senior Member
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Join Date: Dec 2003
Location: Ohio
Posts: 2,990
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Hannah is on her 2nd set of tubes. After 8 mos, one dislodged. I think our ENT said they usually stay in place for about 6 mos. Once she got tubes last year, no problems with the ears at all. As soon as one dislodged in May, major ear infection. Her ENT actually placed new ones in both. In our case, it has been a huge help. If she gets an infection w/tubes in place, we can give her ear drops (antibiotic) instead of an oral ATB.
The tube insertion is really quick and "fortunately" for us, it happened right before stent removal from LTP, so we had several things done at once.
For us, even if one dislodged and it would mean another trip to the OR, I would do it. She has responded so well to them. It's just one thing I don't have to worry about.
Good luck.
Jennie
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Mommy to Hannah 8/2/03: fmr 25-weeker, trached 11/03 for subglottic stenosis, LTP 4/05, CTR 4/06, LTP 1/07. Decannulated 1/19/2007!! Gearing up for reconstruction #4; Also Mom to Brianna, 2/22/98: fmr 24-weeker, a little dramaqueen. My amazing gifts.
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07-01-2005, 10:06 AM
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Member
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Join Date: Aug 2004
Location: New Jersey
Posts: 239
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The ear tubes are a piece of cake! And a Godsend! NO more ear infections or fluid in the ears, good hearing tests, too. Hannah has had several sets already. It is a same day surgery, where she does go under general anesthesia since she has a lot of head movements. Hannah's are not the permanent type, and last from 6 months to one year. In my experience, they do not fall out easily. Hannah has an older brother, too, who loves to play and roughhouse with her and he has not accomplished knocking her tubes out or anything! Hannah, like I said earlier, moves her head from side to side constantly and even that does not cause them to fall out. I highly recommend them.
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Sharon...mom to Hannah, my beautiful little §≈earth-angel≈§. CP, moebius syndrome (a rare disease affecting the cranial facial nerves and characterized by facial paralysis)...Reactive Airway, GERD, trach, g-tube, and lots and lots of suctioning! Recent Baclofen pump for spasticity and scoliosis surgery, Jan 2008, curve corrected from 80 degrees to 25 degrees and doing great!!!!
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