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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
06-19-2005, 06:02 AM
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Wow, I finally got to meet Rachel and Karabeth last night. I hadnt realized how close we lived (about a 5 minute drive). Kara is such a beautiful girl with super blonde hair, and she was babbling during her feeding and looking very content. I cant wait to take Alli over to meet her too.
Rachel, thanks for the syringes. My husband thought he was about to starve when I got home with the pizza! LOL Deb
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Grateful thorns have roses 24 weeker now almost 11 years old and in third grade! trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08 [IMG] [IMG] 
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#2
06-19-2005, 07:44 AM
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There are two children with trachs very close to us-one about 5 minutes (1 year old) and the other about 15 minutes (10 mo. old). We have become very, very close to one family (if you were on our website, there is a pic of Zoe with Joey). In fact, their story is so close to ours, it's creepy. They have really become invaluable resources and great friends. Imagine the sight we made on Friday going to rummage sales with Joey, his mom, and all our equipment!
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Lora - Mom to Zoe (12/26/04), former 27 weeker, BVCP, Subglottic Stenosis, mild reflux, g-tube http://www.caringbridge.org/visit/zoeglasel
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#3
06-19-2005, 11:11 PM
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Deb,
It was SO nice to meet you. I can't wait to meet Alli. Just let me know when. I figured by the time you got home he would have eaten something else  ANd not a problem at all with the syringes, we have a ton of them.Rachel
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Rachel mama to Kara Beth April 9, 2004 Laryngomalacia, High pallet, FINALLY vent free (8/05), Precious Smiley Princess who will tell you like it is!!!! & Timothy Sept 2008 Healthy as could be Also expecting again due in June 2010  
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#4
06-20-2005, 11:38 AM
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I to have met Rachel and Kara Beth. They have seen me several times up here at Children's hospital. I even got to hold Kara for a while one day. She just slept in my arms. She is so pretty and I love her a bunch. She is just an angel.
Oh and ummm Rachel is nice too but you know with me its all about the babies! :-) No really Rachel is a sweetheart and I think its great that we met. I didnt realize we all live this close together. Maybe one day we could all hook up and meet.
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LORI--MOM TO ELLA AND EMMA(born 10-16-04)AND DEREK (born 9-13-01) EMMA- CP,TRACHED, G-TUBED DEC 2004 AND VENT DEPEND JUNE '05, CORD ACCIDENT DUE TO MONOCHORIONIC MONOAMNIOTIC TWIN PREGNANCY 
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#5
06-20-2005, 12:06 PM
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Lori,
How is Emma doing? Your not back in the hospital are you? I have not heard from you guys in a while. How did the move go? I have been wondering about Emma. Rachel
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Rachel mama to Kara Beth April 9, 2004 Laryngomalacia, High pallet, FINALLY vent free (8/05), Precious Smiley Princess who will tell you like it is!!!! & Timothy Sept 2008 Healthy as could be Also expecting again due in June 2010
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#6
06-20-2005, 11:25 PM
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I am so jealous that you all have met and live so close together!
I've talked to Rachel on the phone several times, if that counts for anything.  (haha)I don't really have anyone around me that has a trach. I have one friend that has a daughter with Treacher Collins Syndrome that has one. She has come and baby sat for me before, but she works as a respiratory therapist and is very busy with her daughter. I'm just trying to get you all to feel sorry for me.  (just kidding). I really am glad that you all have found each other.God Bless!!
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#7
06-20-2005, 11:25 PM
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I am so jealous that you all have met and live so close together!
I've talked to Rachel on the phone several times, if that counts for anything. (haha)I don't really have anyone around me that has a trach. I have one friend that has a daughter with Treacher Collins Syndrome that has one. She has come and baby sat for me before, but she works as a respiratory therapist and is very busy with her daughter. I'm just trying to get you all to feel sorry for me. (just kidding). I really am glad that you all have found each other.God Bless!! Erin
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#8
06-21-2005, 12:13 AM
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Erin,
You should just pack the boys up and come up for a few days! LOL Wish it were that easy huh? If only we were all rich! Rachel
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Rachel mama to Kara Beth April 9, 2004 Laryngomalacia, High pallet, FINALLY vent free (8/05), Precious Smiley Princess who will tell you like it is!!!! & Timothy Sept 2008 Healthy as could be Also expecting again due in June 2010
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