Well, Alexander had his broch last night. He stayed Â*in the picu overnight, he has a hard time with sedation, but did really well this time. They didn't even Â*have to bag him this Â*time. The news wasn't great. His lower airway is still floppy and his upper airway is still crowded, and now he has a large granuloma above the Â*trach Â*site. UGH!!! Â*Very disappointing!! Â*I know you all can relate. I've had day dreams that I would go to see him after the bronch and the trach would be gone
Â* Â* Before the bronch the dr was optimistic and said if everything looks favorable i'll just leave the trach out now. Well, that's all I needed to hear to get my hopes up.Which I had been trying very hard not to do. Well, it is what it is! Â*He'll be re-evaluated in a year Â*to check for airway growth. I guess it's better to have the trach and be safe than to take a chance having it removed.(can you Â*tell i'm just trying to make myself feel better). Is it going to be hard for him to use Â*his passy valve with the granuloma above the trach Â*site? Â*Anyway, thanks for your support and prayers, and for listening.