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Pediatric Tracheostomies For parents and caregivers of children with tracheostomies.  Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

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Old 08-19-2002, 06:21 PM
christyw christyw is offline
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Join Date: May 2002
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Kelly,
Your situation sounds very distressing. I had never heard of such a surgery myself, so I have no insight on it. However, I've been asking around. I'm sorry that you're going thru so much, and I hope that you find some peace about this. If I have any info later, I'll be sure to let you know.
-Christy
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Gaithy's Mom:28wk preemie born 8/2000 at 1 LB, IUGR, SGA, ROP, BPD, g-tube/nissen. Trached 4-2001 and LTV950 ventilator until 5-2003. Decannulated 8-3-04
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