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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

06-08-2005, 08:47 AM
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Member
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Join Date: Dec 2004
Location: Coldspring, Texas
Posts: 253
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We use an entristar it is the best one that we have found for Frank.
you can see a picture of it on my website.
www.geocities.com/bosslady_tx
click on the beach pictures
Misty
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SW and Misty...parents to Kathlynn(16), Stephen(14), and Frank(13)
Frank= CP, CMV, microcephaley, epilepsy, chronic lung disease, non-verbal; decannulated 9/7/06; happiest little boy I know.
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06-08-2005, 02:30 PM
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Member
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Join Date: Jan 2004
Posts: 628
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Bobby has a mic-key (that we don't use, but keep around for safety's sake).
A friend's dtr, however, has a Bard button and it is very low profile -- almost completely flat. It looks much more comfortable than the mic-key. But, of course, I think it is more expensive. In Rhiannon's case, though, you might be able to justify it.
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Mom to Bobby, born 10-03, Beckwith-Weidemann Syndrome, trached December 03 due to macroglossia (enlarged tongue) causing upper airway obstruction. Also Mom to Audrey (13) Maddy (11) and Billy (9). Bobby was DECANNULATED 8-17-04 (8months and 1 day with the trach).
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06-08-2005, 03:12 PM
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Administrator
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Join Date: May 2002
Location: Phoenix, Arizona
Posts: 7,320
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Jack had a Bard placed when he first got his g-tube. Â*It was very flat and seemed to be a good button. Jack's nurses had me convinced a Mic-key button was better so we replaced the Bard with a Mic-key -- I still don't know to this day how we got Apria to just send us a Mic-key without a doctor's order, but they did. Â*We just ordered the same size as was the Bard and he's had a Mic-key ever since. Â*I now wonder if we should have stayed with the Bard. Â*The only thing about the Bard - it is very difficult to change out because the balloon is not filled with water that can be easily deflated. Â*There is a special instrument used to "lengthen" the balloon when pulling the Bard out. Â*It did hurt Jack quite a bit to pull it out and he bled. (probably should have been done in the doctor's office, but, as everyone knows, I avoid doctors' offices like the plague). Â*The difficulty of changing out the button is a drawback of having a Bard. Â*
Ann
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06-08-2005, 09:49 PM
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Administrator
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Join Date: May 2002
Location: Phoenix, Arizona
Posts: 7,320
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Here's a picture of the Bard button:
Bard
Ann
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06-09-2005, 07:00 AM
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Hi everyone,
Unlike most of you guys I am from Australia. Over the past few years i have cared for 8 kids (varying ages and abilities) and all of them have had a bard button. One initially had a mickey which was changed to a bard. I guess the bard is more popular over here.
We have found them to be effective, stury, and unobtrusive.
They do tend to leak a bit with children who don't walk, or don't have very good stomach muscles.
Sarah
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