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Old 06-08-2005, 08:47 AM
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franksdad franksdad is offline
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We use an entristar it is the best one that we have found for Frank.

you can see a picture of it on my website.

www.geocities.com/bosslady_tx

click on the beach pictures

Misty
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SW and Misty...parents to Kathlynn(16), Stephen(14), and Frank(13)

Frank= CP, CMV, microcephaley, epilepsy, chronic lung disease, non-verbal; decannulated 9/7/06; happiest little boy I know.
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Old 06-08-2005, 02:30 PM
Barb Barb is offline
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Bobby has a mic-key (that we don't use, but keep around for safety's sake).
A friend's dtr, however, has a Bard button and it is very low profile -- almost completely flat. It looks much more comfortable than the mic-key. But, of course, I think it is more expensive. In Rhiannon's case, though, you might be able to justify it.
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Mom to Bobby, born 10-03, Beckwith-Weidemann Syndrome, trached December 03 due to macroglossia (enlarged tongue) causing upper airway obstruction. Also Mom to Audrey (13) Maddy (11) and Billy (9). Bobby was DECANNULATED 8-17-04 (8months and 1 day with the trach).
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Old 06-08-2005, 03:12 PM
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Jack had a Bard placed when he first got his g-tube. Â*It was very flat and seemed to be a good button. Jack's nurses had me convinced a Mic-key button was better so we replaced the Bard with a Mic-key -- I still don't know to this day how we got Apria to just send us a Mic-key without a doctor's order, but they did. Â*We just ordered the same size as was the Bard and he's had a Mic-key ever since. Â*I now wonder if we should have stayed with the Bard. Â*The only thing about the Bard - it is very difficult to change out because the balloon is not filled with water that can be easily deflated. Â*There is a special instrument used to "lengthen" the balloon when pulling the Bard out. Â*It did hurt Jack quite a bit to pull it out and he bled. (probably should have been done in the doctor's office, but, as everyone knows, I avoid doctors' offices like the plague). Â*The difficulty of changing out the button is a drawback of having a Bard. Â*

Ann
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Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10)
Jack's Journey and Then Some
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Old 06-08-2005, 09:49 PM
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Here's a picture of the Bard button:

Bard

Ann
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Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10)
Jack's Journey and Then Some
TouchStones of Compassionate Care
The Willow Tree Foundation


“Somewhere over the rainbow, skies are blue, and the dreams that you dare to dream really do come true”
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Old 06-09-2005, 07:00 AM
Sarah
 
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Hi everyone,

Unlike most of you guys I am from Australia. Over the past few years i have cared for 8 kids (varying ages and abilities) and all of them have had a bard button. One initially had a mickey which was changed to a bard. I guess the bard is more popular over here.

We have found them to be effective, stury, and unobtrusive.

They do tend to leak a bit with children who don't walk, or don't have very good stomach muscles.

Sarah
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