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Old 05-31-2005, 06:37 PM
Carriestockmal Carriestockmal is offline
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We go in tomorrow at 9 AM. We are so blessed to be at this point. I'll have internet access in the rooms, so Ill keep you posted when there is news to post!
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Mom to Jack, born with a giant omphalocele on 6/30/02 at 32 weeks. Trached 12/23/02 due to secondary pulmonary hypertension. Decannulated 6/2/05! Strong, strong little man!!
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Old 05-31-2005, 06:47 PM
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Carrie - I'm so nervous and so excited right along with you. Â*Prayers, prayers, prayers and crossed fingers too coming your way. Â*A big hug from my Jack to yours. Â*
Love ya,
Ann
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Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10)
Jack's Journey and Then Some
TouchStones of Compassionate Care
The Willow Tree Foundation


“Somewhere over the rainbow, skies are blue, and the dreams that you dare to dream really do come true”
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Old 05-31-2005, 06:52 PM
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Lily's Mom Lily's Mom is offline
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Good luck Carrie and Jack! I hope everything goes very smoothly and that you get great news. Definitely keep us posted, and we'll be sending good thoughts and prayers your way in the meantime!

Erica (Lily's Mom)
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Our fabulous Lily was born 5-26-01 with partial trisomy 7q, Pierre-Robin sequence, VSD, GER; had trach, GT, Nissen at 4 weeks, cleft palate repair at 6 months and 18 months. Decannulated 11-15-04. Proud big sister to Benjamin 10-10-03, baby Vivienne 3-5-07!
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Old 05-31-2005, 06:59 PM
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LeslieML LeslieML is offline
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good luck!! Please let us know how it goes!!!
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Leslie, mother to Chris (12), Chase (3) and Chad (2) I have 3 boys cause I didn't want 4. Chase- X 31 weeker, Trachea Esophageal Fistula, Esophageal Atresia, Pyloric Stenosis, VSD, Pulmonary Stenosis, Severe malacia (90% occlusion)..one failed decann attempt
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Old 05-31-2005, 07:41 PM
hcs_mom hcs_mom is offline
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That is fantastic news! Many prayers that Jack has a successful sleep study and decannulation.

Jennie
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Mommy to Hannah 8/2/03: fmr 25-weeker, trached 11/03 for subglottic stenosis, LTP 4/05, CTR 4/06, LTP 1/07. Decannulated 1/19/2007!! Gearing up for reconstruction #4; Also Mom to Brianna, 2/22/98: fmr 24-weeker, a little dramaqueen. My amazing gifts.
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Old 05-31-2005, 08:04 PM
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annerae63 annerae63 is offline
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We'll be thinking of you tomorrow-saying a few prayers too! Good luck!
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Anne, mom to Evan, born 1/18/01, preemie, TEF/EA repaired, subglottic stenosis, laryngeal web, trach at 6 wks, LTP 8/02, decannulated 5/17/03 , Mic-Key button removed 7/2/04.

http://www.tracheostomy.com/trachkids/kids11/evan

http://anne-evan.blogspot.com
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  #7  
Old 05-31-2005, 09:18 PM
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twintotwin twintotwin is offline
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Carrie, I'll be thinking of Jack tomorrow...praying for success. ~Kerry
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002).
Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!

The Birthday Boys by TwinTransfusion, on Flickr
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Old 05-31-2005, 09:48 PM
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YEAH!!

Carrie, that is very exciting news!! Please keep us updated!!

I will be thinking of you and Jack

Whitney
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Mom to twin boys, Alexander and Aidan born on April 1st, 2003. They are former 25-weekers. Alex was trached from 10-03 to 4-05. Also mom to my lovely new daughter Amelia born August 19th, 2011!
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Old 05-31-2005, 10:39 PM
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good luck. Hope it is very smooth!
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Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.


B & C are surviving triplets. Brooke survived for 1 month.
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Old 06-01-2005, 01:56 AM
Sara's Mom Sara's Mom is offline
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I'll be crossing everything and sending positive vibes your way. Good luck, Jack! I guess I didn't realize this was so soon. How exciting and nervewracking!

Erin
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Mom to Sara 10/23/2000 - trach, congenital subglottic stenosis, laryngeal web, LTP 04/03, eosinophilic esophagitis, Â 2nd LTP 7/20/05 decannulated 7/28/05, retrached 8/25/05, decannulated again 11/11/05!
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