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Pediatric Tracheostomies For parents and caregivers of children with tracheostomies.  Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

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  #1  
Old 04-22-2005, 09:36 PM
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sandra sandra is offline
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Pictures
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Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.


B & C are surviving triplets. Brooke survived for 1 month.
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Old 04-22-2005, 09:40 PM
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Sandra,
As always, your children are beautiful. Thanks for sharing!

Amanda
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Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube.

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Old 04-22-2005, 10:21 PM
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Sandra- Your kids are absolutely beautiful and so happy!

Thanks for sharing.

Kerry
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002).
Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!

The Birthday Boys by TwinTransfusion, on Flickr
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Old 04-22-2005, 10:33 PM
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I love the pictures, especially Brian's happy face and Christopher's beautiful blue eyes!

Ann
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Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10)
Jack's Journey and Then Some
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“Somewhere over the rainbow, skies are blue, and the dreams that you dare to dream really do come true”
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Old 04-23-2005, 05:18 AM
hcs_mom hcs_mom is offline
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Sandra,

Beautiful! Even with all Brian has been through, he just keeps on smiling!!!

Thanks so much for sharing.

Jennie
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Mommy to Hannah 8/2/03: fmr 25-weeker, trached 11/03 for subglottic stenosis, LTP 4/05, CTR 4/06, LTP 1/07. Decannulated 1/19/2007!! Gearing up for reconstruction #4; Also Mom to Brianna, 2/22/98: fmr 24-weeker, a little dramaqueen. My amazing gifts.
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Old 04-23-2005, 12:29 PM
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Sandra,

You have very adorable children! Thanks for sharing the pictures.

Katie
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Katie mom of 26 weeker Jaden(08-03-01) trached at 2 1/2 months, 2 CTRs and 2 LTPs! Also mom of Haley(1-29-00) and Coleby (07-02-07).
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Old 04-23-2005, 04:23 PM
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Lovely and adorable!!

Those are the most bluest eyes around!!

Love all the pictures.

Whitney
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Mom to twin boys, Alexander and Aidan born on April 1st, 2003. They are former 25-weekers. Alex was trached from 10-03 to 4-05. Also mom to my lovely new daughter Amelia born August 19th, 2011!
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Old 04-23-2005, 09:12 PM
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Melisande Melisande is offline
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Sandra,

What a beautiful family! Love the pictures!
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Melisande H. Mother to The Preeminent Grand Poohba Donovan (5/27/03), still some "resolving" apnea, on the autism spectrum and some cerebellar malformations. Trached since he was 6 weeks old. Recently DECANNULATED 4/16/09!! Big brother to Conrad!

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