Nicholas did not like his PMV at all, would not keep it on longer than 2 min. and his doc's said capping was a waste of time, they would have had to down size his trach. Â*They thought this would cause more aggrivations. Â*I was scared to death when we went in for decannulation. Even when we changed is trach he would scream, cry and turn blue. Â*My husband and I were almost sure he would fail any attempt at decannulation. Â*I asked everyone for advice and opinions on capping and the PMV, of course everyone had a different opinion. Â*
The great news is it can be done!!! Â*My son is proof, he has been trach free for 20 days and is doing wonderful! Â*His sats are even better now. Â*On the morning of June 19, they walked over to his bedside, cut the strings and asked me if I wanted to pull it out. Â*I of course did not, I was afraid I would be upset if it didn't work. Â*Nick looked scared and waited a few minutes, took a deep breath through his mouth, rolled over towards me and smiled. Â*It was almost as wonderful as giving birth.
It can be done and if Sofia is ready it will be done any way she wants. Â*These kids are amazing! Â*Good luck and I hope it all turns out wonderful. Â*
Please contact me if you have any questions.
Our little miracle, Nicholas Scott born 08/09/02; CHARGE Syndrome, bilateral cleft lip/palate, congenital heart disease, trach and g-tube, hearing aids. Decanulated!