capping and decannulation

[trach mom]

I also have to cap my daughter before she can be decanned. I am also upset about this since she cannot tolerate. I got the idea from one of the other posts about taking the trach out and leaving it out for a little bit to see how she handles it. I told my husband the last time we went for a bronch that I was going to tell the doctor, either he decans her or I will! I will be serious this time if she can handle breathing with the trach out.

[nicksmom]

Nicholas did not like his PMV at all, would not keep it on longer than 2 min. and his doc's said capping was a waste of time, they would have had to down size his trach. Â*They thought this would cause more aggrivations. Â*I was scared to death when we went in for decannulation. Even when we changed is trach he would scream, cry and turn blue. Â*My husband and I were almost sure he would fail any attempt at decannulation. Â*I asked everyone for advice and opinions on capping and the PMV, of course everyone had a different opinion. Â*

The great news is it can be done!!! Â*My son is proof, he has been trach free for 20 days and is doing wonderful! Â*His sats are even better now. Â*On the morning of June 19, they walked over to his bedside, cut the strings and asked me if I wanted to pull it out. Â*I of course did not, I was afraid I would be upset if it didn't work. Â*Nick looked scared and waited a few minutes, took a deep breath through his mouth, rolled over towards me and smiled. Â*It was almost as wonderful as giving birth.

It can be done and if Sofia is ready it will be done any way she wants. Â*These kids are amazing! Â*Good luck and I hope it all turns out wonderful. Â*

Please contact me if you have any questions.
Carrie