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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
03-01-2005, 12:43 PM
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I received confirmation from Dr. Cotton yesterday that he will speak at our next Conference, which is slated for June 1-3, 2006. Â*Mark your calendars now. Â*It will be held in St. Louis again. Even if your child is trach-free by then, it's a great opportunity to meet your trach board friends. Â*
 Ann
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Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10) Jack's Journey and Then Some TouchStones of Compassionate Care The Willow Tree Foundation   “Somewhere over the rainbow, skies are blue, and the dreams that you dare to dream really do come true” 
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#2
03-01-2005, 01:13 PM
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I have marked my calendar!!! June 1-3 in 2006!!! Hopefully we will be able to attend this one!!!
________ Iolite Vaporiser Review Last edited by Jessica's Mom : 04-05-2011 at 04:44 AM.
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#3
03-01-2005, 01:47 PM
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Well, I had thought we would be decanned by the first one! I will put this on the calendar as a possiblity. That is close to the end of the school year around her, so I will have to wait and see.
Who knows what the future will bring! Godspeed Clare
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Mother to 3 Â*Rebekah 12. Patricia 9 and Jacob 7.Â*Patricia--diagnosed at age 4 with VCP/Subglottic Stenosis. Â*Has had T/A, LTP(8/10/01),Trach(2/25/02), 2 trach revisions arytnoid work,vocal chord lateralization(8/10/04) and countless broncs in the last 4 years. Decannulated!! 9/30/05 Â*Patient at CHOP
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#4
03-01-2005, 09:52 PM
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Ann,
It would be great if we could make it. Hopefully by then my wife and I will have a few days of spare free time built back up again. You were right that the last two days were not good for our leave balances, but my wife and I tag teamed it at the hospital so we only lost one day each. Stefan
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Jakob, born Dec 02, Pfeiffer Syndrome, trached at 5 wks age due to mid-face hypoplasia, cranial vaultx2, monobloc, mid-face distraction, g-tube, pyloric stenosis, nissen, nasal stents, VP shunt, tonsils, adenoids, uvula all removed, tongue suspension, future pilot!!
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#5
03-01-2005, 11:02 PM
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Thats cool but...is there ever any MORE western Confernces?? I swear most things are always in teh Mid west, or east coast....I wish we could travel out that way. I would love to come...
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Casie mom to Skyler 8/21/02 Â*Pierre Robin Sequence, Stickler Syndrome, trached 09/20/2002
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#6
03-02-2005, 07:44 AM
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We're hoping to be there...trach or no trach. It's not gonna stop us this time!
Please let me know what I can do to help. I really want to be part of it! Jennie
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Mommy to Hannah 8/2/03: fmr 25-weeker, trached 11/03 for subglottic stenosis, LTP 4/05, CTR 4/06, LTP 1/07. Decannulated 1/19/2007!! Gearing up for reconstruction #4; Also Mom to Brianna, 2/22/98: fmr 24-weeker, a little dramaqueen. My amazing gifts.
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#7
03-02-2005, 10:32 AM
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Cool beans! We'll be there and I'll be glad to help Karen (if she's going to help too) and you out with planning!!!
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Melisande H. Mother to The Preeminent Grand Poohba Donovan (5/27/03), still some "resolving" apnea, on the autism spectrum and some cerebellar malformations. Trached since he was 6 weeks old. Recently DECANNULATED 4/16/09!! Big brother to Conrad! 
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#8
03-19-2005, 12:11 AM
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Are you sure it's not for June 1-3 of 2005? Just wondering? When I saw the e-mail telling us about it, I was hoping it would be this year, in 2005. Rosie
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Rosie Osborne, mother of three, Sam, Tyler and Annie(my 25 weeker)
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#9
03-19-2005, 07:16 AM
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Awsome, I am so looking forward to meeting everyone.
 Jarita
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Doug, father of Mason. Hemangeoma in Trachea. Had Tracheostomy 5-14-2004 at 4 months of age. Decanned 8-19-05. Closure Surgery 5-5-06.
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#10
03-19-2005, 11:02 AM
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The date is most definitely 2006! There's too much involved in putting a conference together to do one every year. Trust me, June 2006 will be here before you know it! Looking forward to meeting many more of you at the next conference.
Ann
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Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10) Jack's Journey and Then Some TouchStones of Compassionate Care The Willow Tree Foundation “Somewhere over the rainbow, skies are blue, and the dreams that you dare to dream really do come true”
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