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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
02-28-2005, 04:11 PM
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I got a call at work from Nate's nurse that he was having a seizure. He had one almost 4 weeks ago and that was the first he's ever had. When I got home, she said she had called 911 because Nate stopped breathing right after the seizure and turned blue. She gave him 7 rescue breaths (the ambu bag was in his bedroom and she didn't want to leave him). Thankfully he was doing fine when I got there. The paramedics checked him over and I have been in contact with our neurologist. Very scary!!! I'm sure many of you have had similar situations! I'm just knew to this life threatening stuff!!! Thanks for listening!
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 ~Marcie~Mom to Nate (8); trached at 5 wks due to chronic aspiration; CP, hypoglycemia (controlled with diet and meds), seizures, g-tube fed; Also mom to Brianna (16), Allison (14) and Delaney (3) My blog Life Is Good 
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#2
02-28-2005, 05:09 PM
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That is very scary. I'm glad that Nate is okay and you had a good, competent nurse with him.
All our best to Nate and his family.
__________________
Jakob, born Dec 02, Pfeiffer Syndrome, trached at 5 wks age due to mid-face hypoplasia, cranial vaultx2, monobloc, mid-face distraction, g-tube, pyloric stenosis, nissen, nasal stents, VP shunt, tonsils, adenoids, uvula all removed, tongue suspension, future pilot!!
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#3
02-28-2005, 05:32 PM
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{{{{{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}}}}
I know that is scarey!!!!! Celia has had 2 drop seizures in the last year(first ones ever) and one febrile seizure on the 11th of this month and they all scared to poo-poo outta me!!!!!!!! I am glad he came out of it fine!!!!!{{{{{{{{{HUGS}}}}}}}}}
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 http://mamazgirlz.blogspot.com/ Gretch mom to, Heather(22), Aimee(19), and Celia(14) Dandy-Walker syndrome,cleft palate(repaired at 9 yo!),t-tubes,asd, left pulminary arterial stenosis,trach,aspiration,reflux,fundo,g-tube,npo,dysphagia,kidney defect,neurogenic bladder & bowel,spina bifida,scoliosis,seizures,hip dysplasia, sensory issues, ADHD,vasomotor rhinitis,autistic like behaviors, hearing aides.
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#4
02-28-2005, 06:23 PM
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I second what Stefan said - I am glad Nate had a competent nurse with him. I am also glad he is ok. We have never dealt with seizures so I am not familiar with what happens. I hope that was the last one Nate has.
Take care, Amanda
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Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube. 
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#5
02-28-2005, 07:35 PM
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How very frightening. Thank goodness for good nurses who can think on their feet!
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Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.  B & C are surviving triplets. Brooke survived for 1 month.
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#6
02-28-2005, 10:30 PM
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Marcie,
I hope Nate's seizure was an isolated event. Just hearing the word "seizure" puts the fear of God in me, that's for sure. I hope you can get some answers as to what's going on soon. Keep us posted.  Ann
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Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10) Jack's Journey and Then Some TouchStones of Compassionate Care The Willow Tree Foundation   “Somewhere over the rainbow, skies are blue, and the dreams that you dare to dream really do come true”
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#7
03-02-2005, 04:40 PM
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Marcie
I am VERY SORRY about the seizure. Thankfully, the nurse was around to save the day. I am very happy to hear he is doing well... Best wishes, Whitney
__________________
 Mom to twin boys, Alexander and Aidan born on April 1st, 2003. They are former 25-weekers. Alex was trached from 10-03 to 4-05. Also mom to my lovely new daughter Amelia born August 19th, 2011!
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