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Pediatric Tracheostomies For parents and caregivers of children with tracheostomies.  Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

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  #1  
Old 02-13-2005, 03:19 PM
Momi2AntnJadyn Momi2AntnJadyn is offline
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Jadyn's kids w/ tracheostomies page was just updated (thanks, Cindy!)... there are a couple of new pics, and info and stuff like that so if anyone wants to check it out, I think the link is in my signature
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Amanda

Mom to:
Anthony (5 yrs. old)
and Jadyn (2 yrs. old)

Jadyn's page on tracheostomy.com
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Old 02-13-2005, 08:25 PM
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Jadyn looks great. She is about 6 mo. older than Brian and I had to laugh about the rolling. That is how Brian gets anywhere he want to go. That is one task Brian has mastered, as well. I wish he would eat as well as Jadyn!
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B & C are surviving triplets. Brooke survived for 1 month.
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Old 02-13-2005, 09:12 PM
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Whitney Whitney is offline
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Amanda

I loved the update and all those precious pictures. Jadyn is truly adorable. Thanks for sharing!!

Whitney
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Mom to twin boys, Alexander and Aidan born on April 1st, 2003. They are former 25-weekers. Alex was trached from 10-03 to 4-05. Also mom to my lovely new daughter Amelia born August 19th, 2011!
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Old 02-13-2005, 10:00 PM
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Ann Ann is offline
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Jadyn is just the sweetest. Thanks for the update. Both your children are beautiful!

Ann
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Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10)
Jack's Journey and Then Some
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“Somewhere over the rainbow, skies are blue, and the dreams that you dare to dream really do come true”
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Old 02-14-2005, 01:00 AM
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McKenna&clan McKenna&clan is offline
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Amanda,
I reread your story and it's just amazing and wonderful. She is such a beautiful and brave girl...and let us not forget...a master roller! She smiles because she is so happy that she has such a wonderful mother and family! You are doing an absolutely terrific job with her and your handsome son!
Janet
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Janet, mom to McKenna (5) and Randy (21). McKenna, currently speaking in tongues at a rate of 80 gibberings per minute driving her parents, sibling into a happy state of dazed insanity! Trached at 2 months d/t lymphangioma
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Old 02-14-2005, 04:36 AM
Carriestockmal Carriestockmal is offline
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what a sweetie! I hope that the winter gets easier on you guys!
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Mom to Jack, born with a giant omphalocele on 6/30/02 at 32 weeks. Trached 12/23/02 due to secondary pulmonary hypertension. Decannulated 6/2/05! Strong, strong little man!!
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Old 02-14-2005, 03:53 PM
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Melisande Melisande is offline
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Sweet girl! She does look sooo happy!
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Melisande H. Mother to The Preeminent Grand Poohba Donovan (5/27/03), still some "resolving" apnea, on the autism spectrum and some cerebellar malformations. Trached since he was 6 weeks old. Recently DECANNULATED 4/16/09!! Big brother to Conrad!

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Old 02-16-2005, 03:08 PM
christyw christyw is offline
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Jadyn is beautiful (as always!!). I love the one of her lying on the floor smiling real big (the bottom pic). She's precious. I hope you guys are doing well. I knew I had read something of her having been really sick. I hope you're all doing fine right now.

Christy
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Gaithy's Mom:28wk preemie born 8/2000 at 1 LB, IUGR, SGA, ROP, BPD, g-tube/nissen. Trached 4-2001 and LTV950 ventilator until 5-2003. Decannulated 8-3-04
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Old 02-16-2005, 03:38 PM
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LeslieML LeslieML is offline
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what an adorable little princess. She is truly amazing!!
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Leslie, mother to Chris (12), Chase (3) and Chad (2) I have 3 boys cause I didn't want 4. Chase- X 31 weeker, Trachea Esophageal Fistula, Esophageal Atresia, Pyloric Stenosis, VSD, Pulmonary Stenosis, Severe malacia (90% occlusion)..one failed decann attempt
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