Nissen

arielsmom · #1 02-04-2005, 03:35 PM

It seems as though the Nissen's "fail" about 80% of the time. Something we weren't told when my daughter had her surgery. Many people have it done a second time. We opted not to do that and manage her reflux in other ways which has been really effective. The problem is that it is not a great procedure. They don't want to tie off the stomach so tight that the child can't eat. (food needs to pass through it). I think you will find many people on this board have had similar issues and some have had the surgery done again.
Karen

LeslieML · #2 02-05-2005, 12:02 PM

Melinda,
We had three (yep three) failed Nissens. My son was born with E/A also and his pediatric surgeon explained the reason why the Nissens failed.
In order to do a Nissen a tool must be inserted down the esophagus that the surgeons use as a "shelf" to wrap the stomache around. In children born with challenges like ours sometimes they can't get this tool down there and have to do the wrap "blind" and that is why it slips or fails.
I had it after the third one and we just went home with a JG tube. I was sick of him being NPO all the time.
Curious did little Noah have TEF as well?

I belong to the EATEF board but the messages are restricted on where you can post them, not as free flowing as this one is but there is still alot of valuable info on there.
Good luck and HTH
Leslie

Doug-Iowa · #3 02-05-2005, 02:46 PM

Call the surgeon's office and have them send YOU a surgery report. It will tell everything that they did during the surgery. I don't have all of Mason's, but I have a few.

Jarita

Carriestockmal · #4 02-07-2005, 10:37 PM

oh yes - they certainly can come undone. Jack pukes all the time - and he has a full nissan!