I agree--this needs to be evaluated closely by a pulmonologist and gastrointestinal doctor. Where are you located? Your child may need a feeding tube temporarily while a speech therapist works on proper oral motor function to re-establish a proper swallow response.
Jakob, born Dec 02, Pfeiffer Syndrome, trached at 5 wks age due to mid-face hypoplasia, cranial vaultx2, monobloc, mid-face distraction, g-tube, pyloric stenosis, nissen, nasal stents, VP shunt, tonsils, adenoids, uvula all removed, tongue suspension, future pilot!!