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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
03-19-2002, 11:11 AM
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Anyone know how to get to the old site with the kids and their bios? I can't get in anymore. Is it still available? If so, where? Thanks! Sue
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Michael's mom, 2 yo with hypotonia, possible myopathy, vent dependent at night, Beautiful, beautiful smile, and hugs are contagious 
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#2
03-19-2002, 11:41 AM
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From the homepage of Aaron's Trachepstomy Page just click on the Hot: Kids with Tracheostomies link. I just tried it and got there ok. Sometimes it will say the page is not found and you have to do it again, but other than that it's there. Deb
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Grateful thorns have roses 24 weeker now almost 11 years old and in third grade! trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08 [IMG] [IMG]
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#3
03-19-2002, 01:32 PM
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Hey, thanks!! I lost my link. Here's a link to page 3.. you should read about "Ken". He's an adult with a trach AND a normal life!! Really inspirational. Here's the link:
http://tracheostomy.com/trachkids/kids3/ken.htm
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Michael's mom, 2 yo with hypotonia, possible myopathy, vent dependent at night, Beautiful, beautiful smile, and hugs are contagious
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#4
03-24-2002, 06:15 PM
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Hi All, Â*The server that hosts Aaron's Tracheostomy Page was down off and on last week. Â*Maybe why some of you couldn't get to the site. Â*Apologies for any inconvenience. Â*
To add a child to Aaron's Tracheostomy Page, just email whatever you would like to say on the page, along with a photo file, and I will do the rest. If you don't have a photo file, you can mail a picture. Â*Email me personally for my mailing address. Pictures can be returned upon request. You can make changes, updates or remove the page at any time by emailing your request to me. Yes, we are now on Page 11 and over 200 kids with tracheostomies! Sincerely, Cynthia Bissell www.tracheostomy.com
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Cindy - Mom to Aaron (age 19), trached for 4 years, subglottic stenosis, ADHD, learning disability, former 26 week preemie and identical twin to Eric (age 19), spastic quad CP, moderate MR, seizure disorder; Anthony (age 19), spastic quad CP, g-tube, seizure disorder, cortical vision impairment, profound MR; and Natasha (age 6) CP, cortical blindness, seizure disorder, profound MR, shunt, g-tube.  Home Page: http://www.bissells.com
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