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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
09-18-2004, 03:38 PM
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I just stopped by to read the latest on the board and wanted to say HI and give many hugs to everyone. It's been so long since I posted and I really miss this board and the daily interaction with everyone. So many are new here and so many are so familiar. I pray all is well with everyone.
Parker turned 4 in August, he's been decannulated for 1 year now. Time fly's by........... He's now in preschool 3 days a week and loves it. He big and beautiful and the light of my life. Through all of this he's taught me so much more about myself and what life's all about then I ever thought was to be learned. We'll be leaving for Disney in October from the awesome gift of Make a Wish. We are all looking forward to our first family vacation. So nice to stop in and say Hey!!!! I wish happiness and a day full of smiles to all of you. Cory P's MOM
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Parker, 3 Yrs. old., trached at 3 months (Nov. 2000) due to VC paralysis/paresis, DECANNULATED 9/5/03. A great litle guy who loves Hulk, Spiderman and is mommy's true love !!!!! (Page 8 of Aaron's Page) 
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#2
09-18-2004, 04:56 PM
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Cory - HEY, I don't know if you'll be stopping back by to read replies, but I didn't know if you knew that Gaithy was decannulated or not (actually a few kids were all decanned close together lately). Her trach was taken out on August 3rd, and she turned 4 on the 18th. She's having to use CPAP at night tho, and is having her tonsils and adenoids removed in November...so we're not totally "out of the woods" yet, but hopefully she will be able to remain trach free. She's fine now, while awake, but the surgery and swelling will be scary.
I'm so glad Parker is doing so well! Have a great time at Disney!! Christy 
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Gaithy's Mom:28wk preemie born 8/2000 at 1 LB, IUGR, SGA, ROP, BPD, g-tube/nissen. Trached 4-2001 and LTV950 ventilator until 5-2003. Decannulated 8-3-04
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#3
09-18-2004, 05:17 PM
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Hi Cory,
Great to hear from you. I was actually thinking about Parker the other day. It is so great to hear that he has done so well. I can't wait for our day to come, it will be wonderful. I hope you have a lovely and well deserved Disney trip. Keep in touch. Kelly and Indie
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Kelly, mother of , Indira 6 (trach and g-tube)[/color] [/color]and Max 4. [/color]When there is no  you are the reason I bound out of bed. Thank-you for giving me life! See Indie- http://www.tracheostomy.com/trachkids/kids12.htm
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#4
09-19-2004, 06:38 PM
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Cory, It was great to see your post! I'm so glad that Parker is doing so great. Have a great time at Disney! Kim
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#5
09-20-2004, 09:10 AM
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I'm glad that he is doing so well. Corey was decannulated on August 16th. Have fun at Disney!
Amy
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Amy - Mother to Corey(4-13-02), 27 weeker (1lb. 10oz.):BPD, Tracheobronchomalacia, Subglottic Stenosis, G-button, been off ventilator since March 2003. Â*Decannulated August 16, 2004 and now g-tube free as of August 10, 2005!!!
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