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Old 09-12-2004, 09:20 AM
cmnorman cmnorman is offline
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We finally made it to Cincy! Of course, not with a few bumps in the road. Our Dell laptop decided to crash the day before we left. Maybe not such a big deal but he considering that on a 13 hour drive without any Baby Einsteins, it was the worst timing ever! Fortunately, we bit the bullet and bought a portable DVD player and it was the best investment ever. Marisa was a trooper and even had some smiles after the long trip. We finally got a PC tech to come out to the hotel and 'fix' it (well, not exactly fix but reinstall the whole dang operating system!!!) so we are now all connected again!

Tomorrow is the big day for Marisa. She had her bronch, adenoidectomy, epliglottoplasty, and an ABR on Wednesday and did surprisingly well. Very cranky in post anesthesia and didn't really like it when the nurses tried to salvage an IV that crimped up and went bad. Overall a great experience but was disappointed with PACU and the lack of having the correct supplies and trachs and everything necessary for a trach patient. What is most important is that Dr. Cotton was happy with weight gain and still said that we are on for Monday CTR at 0730 or, if he gets started and sees something different, a LTP. Keeping fingers crossed that the surgery will go well and the recovery will be uneventful.

Thank you to all for prayers and thoughts for Marisa. We will keep you posted. I am getting nervous. We were able to meet Robin yesterday and would love to meet others while we are here during these next 5 weeks. You can email me to set up a time/day and I will try to check them daily. We just got into the Ronald McDonald house today after 5 days and starting off 15th on the waiting list. Not too bad.

And I just read Abby's post on what I learned...thank you...I needed that today. Thank you to all of you that have shared your most private thoughts and your families with us. I can't imagine how we would have gotten to this point without you all.

Trust and Believe in Him,
Michelle
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Michelle, Marisa's Mom, 27 week preemie, trached from 11/03 - 9/04 for severe subglottic stenosis, LTP 9/04, right hemiplegia (Grade IV left IVH/PVL), survivor and my hero with the most beautiful smile!

http://www.freewebs.com/marisanicole
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Old 09-12-2004, 11:54 AM
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Ann Ann is offline
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Thanks for the update Michelle. Â*Marisa will be in my thoughts and prayers for a successful surgery and a smooth recovery. Â*That is so neat that you were able to meet up with Robin and so nice of Robin to make the trip Â*

Good luck and keep us posted when you get a chance.


Ann
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Old 09-12-2004, 12:21 PM
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annerae63 annerae63 is offline
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Prayers will be coming your way tomorrow and the days following. I hope all goes as planned.

Welcome to our great state of Ohio!!

PS-I have to agree that a portable DVD player is one of the best investments we've made as well when it comes to long trips!
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Anne, mom to Evan, born 1/18/01, preemie, TEF/EA repaired, subglottic stenosis, laryngeal web, trach at 6 wks, LTP 8/02, decannulated 5/17/03 , Mic-Key button removed 7/2/04.

http://www.tracheostomy.com/trachkids/kids11/evan

http://anne-evan.blogspot.com
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Old 09-12-2004, 01:16 PM
Carriestockmal Carriestockmal is offline
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you have my prayers! Good luck!
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Mom to Jack, born with a giant omphalocele on 6/30/02 at 32 weeks. Trached 12/23/02 due to secondary pulmonary hypertension. Decannulated 6/2/05! Strong, strong little man!!
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Old 09-12-2004, 01:39 PM
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RobiL RobiL is offline
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It was wonderful meeting you yesterday.
Great to hear you got in at the Ronald McDonald House.

I'll be praying for you all.

Marisa is soo cute and funny.

Talk to you later
Robin L
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Former 24 weeker, decannulated 2 times, retrached Feb 2006. Mom to 4 crazy kids: Owen 8, Hanna, Bailey and Olivia 6 yr old triplets. Always striving for the perfect airway! [/url]
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Old 09-12-2004, 10:36 PM
akabot akabot is offline
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I will be praying that the surgery and recovery goes well!

Amy
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Amy - Mother to Corey(4-13-02), 27 weeker (1lb. 10oz.):BPD, Tracheobronchomalacia, Subglottic Stenosis, G-button, been off ventilator since March 2003. Â*Decannulated August 16, 2004 and now g-tube free as of August 10, 2005!!!
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Old 09-13-2004, 01:23 PM
Laurie Laurie is offline
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I wish Marisa the very best in surgery and recovery. We are thinking of you!
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Laurie - Mom to Evan (the E-man), 27 week preemie, born 2-23-02, trached at 3 months for severe BPD. Vent dependent until 10 months, G-tube placed at 17 months, oxygen dependent until 2 years, 3 months, decannulated 6-27-04 at 2 years 4 months. The most enthusiastic, positive person I've met.
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Old 09-13-2004, 02:30 PM
Kim Sean's Mom
 
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I hope things went well this morning. Please keep us updated, all of our prayers are with you! Kim
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