Pediatric Tracheostomy Home Care Guide at Amazon.com


Go Back   Aaron's Tracheostomy Message Board > Pediatric Tracheostomies
Reload this Page Small world

Pediatric Tracheostomies For parents and caregivers of children with tracheostomies.  Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

Reply
 
Thread Tools Display Modes
  #1  
Old 09-09-2004, 07:18 PM
Whitney's Avatar
Whitney Whitney is offline
Mentor
  
Join Date: Dec 2003
Location: Denver, CO
Posts: 5,387
Default
Hi,

We went to Children's hospital for Alex's MRI this morning. Â*Our nurse was a fellow trach parent. Â*He has a daughter (she's 3) with a trach. Â*She was a preemie too and has trachealbronchialmalacia. Â*She is capped most of the time and failed decannulation in June for unknown reasons. Â*We talked for nearly an hour and it was great meeting someone that really understands our daily frustrations and challenges associated with the trach life. Â*He knows all about United and Apria. Â*He even used the previous nursing agency we used!!! Â*It was nice meeting someone that we could relate with. Â*He said they were probably going to consult with an ENT. Â*They have never met with one and it seems like a logical next step. Â*We had an appointment with our ENT yesterday and he wants to do another bronch next month. Â*We have an appointment with our pulmonologist next week also. Â*Anyway, I knew everyone would appreciate this little story especially those that went to the conference in June. Â*Its so nice to meet people that have similar situations as your own...

Whitney
__________________

Mom to twin boys, Alexander and Aidan born on April 1st, 2003. They are former 25-weekers. Alex was trached from 10-03 to 4-05. Also mom to my lovely new daughter Amelia born August 19th, 2011!
Reply With Quote
Reply

« Previous Thread | Next Thread »

Thread Tools
Display Modes
Linear Mode Linear Mode

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
vB code is On
Smilies are On
[IMG] code is On
HTML code is Off


All times are GMT -5. The time now is 09:56 PM.

Contact Us - Aaron's Tracheostomy Page - Archive - Top

Disclaimer: The information and resources on Aaron's Tracheostomy Page, Aaron's Tracheostomy Message Boards and the Trachties Listserv are for educational purposes only. This web site and its resources are not engaged in rendering medical, pharmaceutical nor therapeutic advice or professional services. The information provided through these pages, message boards and listserv or any links from this web site should not be used as a substitute for professional advice by qualified doctors and/or therapists.

Powered by vBulletin® Version 3.6.5
Copyright ©2000 - 2013, Jelsoft Enterprises Ltd.