Foundation update

Ann · #1 08-20-2004, 02:37 PM

Hi Everyone -
Some of you may remember months ago I mentioned that I wanted to set up a foundation that will provide respite opportunities for parents of medically fragile children - such as a day at the spa, a golf outing, dinner and a movie and things of that nature. Â*Since the conference is now over, I have been able to make some progress on the foundation. Â*I have incorporated under the name Â“The Willow Tree FoundationÂ”. Â*The name was chosen for the reason that in the raging storm the willow tree bends but it doesnÂ’t break. Â*Much like us parents, donÂ’t you think? Â*I have also reserved my webpage name, although itÂ’s far from being set up. Â*I am now in the process of applying for tax exempt status with the IRS. Â*IÂ’ve found a resource of other non-profit organizations from which I can apply for grant money. Â*I am also putting together information that will be provided to these organizations that sets forth who parents of medically fragile children are, what we do and why we need respite opportunities. Â*In this regard, I could really use some help from you all. Â*What I want to put together is a Â“Day in the LifeÂ” series that features our kids and tells what a day in the life is like - especially when our kids are sick. Â*So . . . anyone out there who has the time and the interest in providing me with a Â“day in the lifeÂ” of your child, I would really appreciate it. Â*If you have any questions or suggestions, you can email me privately at: schrooten1@cox.net.

Thanks in advance-

Ann

RobiL · #2 08-20-2004, 09:27 PM

Ann,

What a wonderful idea. Good luck with it.

Robin Lesko

sandra · #3 08-20-2004, 10:17 PM

What kind of format are you looking for? Video, written , or some other kind of media..

Ann · #4 08-20-2004, 10:25 PM

Hi Sandra - I'm looking for a written format. Thanks!

Ann

sandra · #5 08-20-2004, 10:28 PM

I will see what I can do in the next few days. Sounds like a wonderful idea.

cmnorman · #6 08-21-2004, 10:23 AM

Wonderful idea Ann...I will see what I Ican put together this weekend!

Michelle

Doug-Iowa · #7 08-21-2004, 12:32 PM

What a wonderful idea Ann. Count me in. Mason has an appt. on the 26th of this month in Ia City. I will take notes, and write a little summary for you. His appt. is 2 hrs away, and we have to be there at 9am. UGH! Although Mason's medical needs aren't as complex as some of our other children on this forum, it still takes a lot to get him prepared. He also has another surgery coming up, and I can write a little something about that too if you would like. We had often though about setting up a foundation, but didn't know how to go about it. What a great thing to do.

Jarita

abby · #8 08-21-2004, 03:44 PM

Great idea! count me in too..I wrote an article regarding my ivf experience, loss of Zachary and now jared's road that Im dying to put out somewhere but everyone wants "experienced writers"! Oh well, I will take my hand and do a day of jared for you(better cause anyways!)
~Abby

sandra · #9 08-21-2004, 11:04 PM

Ann,

I emailed you with what I wrote up. Please let me know if you can not open the attachment or something like that. I will figure out another way to send it....Sandra

Melisande · #10 08-23-2004, 04:18 PM

Ann,

This is wonderful! I'm glad you have made the time and energy to do such things. I know what a commitment that is. I am just starting to see my way clear of the fog I've been in since we brought Donovan home last year. I will try to write something up for you if you want. Are you looking for someone who has 24 hour nursing coverage though? We are starting to scale back, but just beginning and we can only do so much as both of us work. Let me know. Thanks!