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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
08-19-2004, 06:48 PM
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Hi
We talked to our pulmonologist today and she said we needed to stop the trach collar trials since Alex is having respiratory distress symptoms. She said we can also have the ENT put back in the 4.5 Bovina. I also spoke w/ the GI nurse and she said they want to do an endoscopy and bronch on Alex at the same time. So, we will have the ENT put back in the 4.5 during this time. I would rather upsize the trach vs stopping the trials. Alex had done well prior to our downsizing on Saturday. Aidan will get a bronch and endoscopy too (hopefully the same day). Aidan's gastric emptying study came back normal and Alex's upper GI showed some reflux. The doc said he is worried about the Nissen (duh). Oh well... Whitney
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 Mom to twin boys, Alexander and Aidan born on April 1st, 2003. They are former 25-weekers. Alex was trached from 10-03 to 4-05. Also mom to my lovely new daughter Amelia born August 19th, 2011! 
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#2
08-20-2004, 03:33 PM
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I hope that everything goes well with the bronch and endoscopy for the twins. I'm sorry that you had to stop the trach mask trials. Hopefully upsizing again will do the trick.
Amy
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Amy - Mother to Corey(4-13-02), 27 weeker (1lb. 10oz.):BPD, Tracheobronchomalacia, Subglottic Stenosis, G-button, been off ventilator since March 2003. Â*Decannulated August 16, 2004 and now g-tube free as of August 10, 2005!!!
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