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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
08-18-2004, 01:17 PM
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Well, with her two month birthday (we’re allowed to make up birthday periods right?) Ayden got to try out a passy-muir speaking valve today. I, unfortunately, was at the office so my wife was there and I was only told about it after the fact(but I’ve been assured we’ll give it a go again tonight or I’ll throw a fit like the little boy two rooms down). It brought my wife to tears just to hear her cry, but the experience was relatively short lived with her coughing it off once and then getting rather upset. In the end, two months is quite early for this here (Ottawa, Ontario Canada) but the room was packed and many more came in when the “trached baby” made a quasi normal audible sound for the first time since her arrival. I’m a little teary eyed just thinking about it and can’t do much at my desk but think about hearing he, if only for 20 seconds or so this evening. Small things can be great things, great things are special thing, and the sound of my daughters cry will be all of the above.
AydenÂ’s dad 
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#2
08-18-2004, 01:22 PM
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Congrats! I know you are biting at the bit to hear her tonight!
__________________
Leslie, mother to Chris (12), Chase (3) and Chad (2) I have 3 boys cause I didn't want 4. Chase- X 31 weeker, Trachea Esophageal Fistula, Esophageal Atresia, Pyloric Stenosis, VSD, Pulmonary Stenosis, Severe malacia (90% occlusion)..one failed decann attempt
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#3
08-18-2004, 02:04 PM
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It is the most amazing sound ever. Enjoy every minute of it!!
there will be more and more.
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Bonnie, mother to 4 year old Jonathan. Â*He was born 10-17-02 happy and healthy. Â*At 7 months of age he was paralyzed from the shoulders down, diagnosed with Acute Transverse Myelitis. Trached 6-03, on and off vent, Â*g/j tube. Â* He is true fighter and the love of our lives.
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#4
08-18-2004, 03:41 PM
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Enjoy it. Every little thing becomes a great memory.
Misty
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#5
08-18-2004, 03:52 PM
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That is great. It is such an awesome sound, something so many take for granted. ENJOY!
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Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube. 
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#6
08-19-2004, 10:57 PM
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That's so great!!! I remember waiting over a year to hear my Corey's first cry. There is nothing more beautiful.
Amy
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Amy - Mother to Corey(4-13-02), 27 weeker (1lb. 10oz.):BPD, Tracheobronchomalacia, Subglottic Stenosis, G-button, been off ventilator since March 2003. Â*Decannulated August 16, 2004 and now g-tube free as of August 10, 2005!!!
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