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Pediatric Tracheostomies For parents and caregivers of children with tracheostomies.  Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

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Old 08-14-2004, 12:21 AM
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I just want to wish all the "decannulees" lots of luck next week. Â*My prayers will be with Corey, Bobby and Alli for successful decannulations. Â*Amy, Barb and Deb . . . hugs to you guys and know I'll be thinking about you and sending positive thoughts your way.


Ann
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Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10)
Jack's Journey and Then Some
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“Somewhere over the rainbow, skies are blue, and the dreams that you dare to dream really do come true”
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Old 08-14-2004, 12:50 AM
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YES!!!! GOOD LUCK to everyone!! PLEASE keep us updated on their progress and we will be thinking of you all next week.

Best Wishes,

Whitney
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Mom to twin boys, Alexander and Aidan born on April 1st, 2003. They are former 25-weekers. Alex was trached from 10-03 to 4-05. Also mom to my lovely new daughter Amelia born August 19th, 2011!
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Old 08-14-2004, 07:06 AM
cmnorman cmnorman is offline
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Good Luck everyone!!! I can't wait to see all of the updates next week of success. You all will be in our thoughts.

Michelle
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Michelle, Marisa's Mom, 27 week preemie, trached from 11/03 - 9/04 for severe subglottic stenosis, LTP 9/04, right hemiplegia (Grade IV left IVH/PVL), survivor and my hero with the most beautiful smile!

http://www.freewebs.com/marisanicole
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Old 08-14-2004, 07:19 AM
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Yes, we'll be thinking and praying for all of you.
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Anne, mom to Evan, born 1/18/01, preemie, TEF/EA repaired, subglottic stenosis, laryngeal web, trach at 6 wks, LTP 8/02, decannulated 5/17/03 , Mic-Key button removed 7/2/04.

http://www.tracheostomy.com/trachkids/kids11/evan

http://anne-evan.blogspot.com
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Old 08-14-2004, 09:35 AM
christyw christyw is offline
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Thinking of you all and hoping for success!

Christy
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Gaithy's Mom:28wk preemie born 8/2000 at 1 LB, IUGR, SGA, ROP, BPD, g-tube/nissen. Trached 4-2001 and LTV950 ventilator until 5-2003. Decannulated 8-3-04
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Old 08-14-2004, 03:43 PM
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I will be praying that everything goes well for all of you.

Misty
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Old 08-14-2004, 09:09 PM
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Lots of prayers coming your ways!! Good luck! Please update asap!
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Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube.

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Old 08-14-2004, 10:06 PM
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Looking forward to lots of great stories. Prayers thateverything goes great!
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Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.


B & C are surviving triplets. Brooke survived for 1 month.
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Old 08-15-2004, 09:13 AM
akabot akabot is offline
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Thank in advance for all of your thoughts and prayers. They must already be working to help my nervousness!

Amy
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Amy - Mother to Corey(4-13-02), 27 weeker (1lb. 10oz.):BPD, Tracheobronchomalacia, Subglottic Stenosis, G-button, been off ventilator since March 2003. Â*Decannulated August 16, 2004 and now g-tube free as of August 10, 2005!!!
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Old 08-15-2004, 08:35 PM
hcs_mom hcs_mom is offline
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Wishing everyone heading in for decannulation much success. We will praying for all throughout the week. Keep us updated!

Jennie
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Mommy to Hannah 8/2/03: fmr 25-weeker, trached 11/03 for subglottic stenosis, LTP 4/05, CTR 4/06, LTP 1/07. Decannulated 1/19/2007!! Gearing up for reconstruction #4; Also Mom to Brianna, 2/22/98: fmr 24-weeker, a little dramaqueen. My amazing gifts.
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