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Old 08-05-2004, 07:12 PM
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LeslieML LeslieML is offline
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Everything looks GREAT!! Supposedly he is being "overventilated" because his ABO were totally cool even after we dropped his PEEP and CPAP down to 4 for an hour and redid the Gas....(the checked his sats when we arrived...100%)
SO we are going to start weaning down his PEEP and CPAP down to 4 in the morning and evening time for an hour and increase the time every couple days. I am so excited.
We did get a concentrator (he isn't on any O2 but they said that could be an outcome of taking him off the machine) and we pushed for a SAT monitor and we got this cool hand held one..we are to take them PRN throughout the day during different activities!!
I am stoked
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Leslie, mother to Chris (12), Chase (3) and Chad (2) I have 3 boys cause I didn't want 4. Chase- X 31 weeker, Trachea Esophageal Fistula, Esophageal Atresia, Pyloric Stenosis, VSD, Pulmonary Stenosis, Severe malacia (90% occlusion)..one failed decann attempt
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Old 08-05-2004, 07:15 PM
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I am so glad. Everything sounds great. I am so glad that you pushed for a sat monitor. I think it will give you peace of mind in the middle of the night if you think something is wrong. Congrats on the wonderful report!
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Old 08-05-2004, 07:43 PM
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Nothing like the news of being over-ventilated!! I remember when that started happening with Gaithy. She had had such TERRIBLE lung disease, such bad scarring...etc... But it resolved within 1-1.5 yr and her vent was giving her WAY too much assistance. We were able to start weaning like mad, and although we did the sprinting in a conservative fashion, it wasn't long til she was totally vent-free. It sounds like he will be off the CPAP soon. Maybe he could start using it during sleep only?? Anyway, congrats!!!


Christy
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Old 08-05-2004, 11:17 PM
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That's terrific news and I'm sooooo happy you were able to get a pulse-ox. Â*Keep up the good work Chase.

Ann
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Old 08-05-2004, 11:50 PM
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I'm also very glad you got the sat monitor, way to go!

Erika
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Old 08-06-2004, 06:38 AM
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Good for you pushing to get the pulse-ox. So exciting that Chase will start weaning - that is great!

Take care, Amanda
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Old 08-06-2004, 07:58 AM
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I'm glad that you were able to get a pulse ox. Congratulations on over-ventilation!!! Maybe they can move quickly with the weaning!

Amy
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Amy - Mother to Corey(4-13-02), 27 weeker (1lb. 10oz.):BPD, Tracheobronchomalacia, Subglottic Stenosis, G-button, been off ventilator since March 2003. Â*Decannulated August 16, 2004 and now g-tube free as of August 10, 2005!!!
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