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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
08-04-2004, 06:00 PM
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Frank will be having surgery on the 11th. He will be having a porta cath putin at Hermann Hospital in Houston. Also everyone pray I get over my ear infection soon, I am ready to kill. Frank's sister, Kathlynn, turns 9 on Sat and we are planning on a trip to Six Flags Astroworld/Waterworld if everyone is well. Frank will be staying home with daddy because it is way to hot to have him out all day. It was 106 degrees today.
Misty 
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#2
08-04-2004, 06:04 PM
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I'm sending prayers and well wishes both yours and Frank's way. Seems Frank has had a tough time of it lately. I hope his surgery helps keep him healthy. Good luck and have fun at Six Flags.
Ann
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Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10) Jack's Journey and Then Some TouchStones of Compassionate Care The Willow Tree Foundation   “Somewhere over the rainbow, skies are blue, and the dreams that you dare to dream really do come true”
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#3
08-04-2004, 06:44 PM
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I'll be praying that tthe surgery goes well, the ears feel better and the birthday is loads of fun. You have had quite a year it seems, and could probably use a break! Try to take care of yourself inthe midst of all this. Deb
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Grateful thorns have roses 24 weeker now almost 11 years old and in third grade! trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08 [IMG] [IMG]
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#4
08-04-2004, 06:50 PM
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All our best wishes to Frank and his family. Hopefully the surgery will make those IV antibiotic treatments easier (I'm assuming a porta-cath is like a central line?).
Misty, I wouldn't want to be in your profession at any time, especially with an ear infection...take care of yourself too!
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Jakob, born Dec 02, Pfeiffer Syndrome, trached at 5 wks age due to mid-face hypoplasia, cranial vaultx2, monobloc, mid-face distraction, g-tube, pyloric stenosis, nissen, nasal stents, VP shunt, tonsils, adenoids, uvula all removed, tongue suspension, future pilot!!
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#5
08-05-2004, 09:47 AM
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I hope all goes well with the surgery and your ear infection gets better.
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Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.  B & C are surviving triplets. Brooke survived for 1 month.
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#6
08-06-2004, 06:55 AM
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Misty, I will be praying that everything goes smoothly with Frank's surgery. Please update us.
I know what you mean about this heat. We haven't been able to do much with Jacob the past few weeks. Between the rain and the extreme heat, it just doesn't make for nice outings. Anyways, I hope you are feeling better soon! Take care, Amanda
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Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube. 
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#7
08-06-2004, 07:59 AM
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I'll be praying that Frank's surgery goes well on Wednesday!
Amy
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Amy - Mother to Corey(4-13-02), 27 weeker (1lb. 10oz.):BPD, Tracheobronchomalacia, Subglottic Stenosis, G-button, been off ventilator since March 2003. Â*Decannulated August 16, 2004 and now g-tube free as of August 10, 2005!!!
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#8
08-07-2004, 12:00 AM
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Misty
I hope you get to go to Six Flags and that its not too hot. I know Texas can be miserable  . Hopefully, Frank's surgery will go smoothly. Get to feeling better soon ... Whitney
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 Mom to twin boys, Alexander and Aidan born on April 1st, 2003. They are former 25-weekers. Alex was trached from 10-03 to 4-05. Also mom to my lovely new daughter Amelia born August 19th, 2011!
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#9
08-07-2004, 02:55 PM
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I keep you and your family in my thoughts and prayers. Be strong and take care
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#10
08-07-2004, 06:33 PM
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Misty I do hope that Frank's surgery goes well. I'm sorry you've had an ear infection - that is definitely no fun at all, and can be terribly painful. I hope that all of you ARE WELL for your trip and can have a great time.
Christy
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Gaithy's Mom:28wk preemie born 8/2000 at 1 LB, IUGR, SGA, ROP, BPD, g-tube/nissen. Trached 4-2001 and LTV950 ventilator until 5-2003. Decannulated 8-3-04
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