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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

07-18-2004, 03:58 PM
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Senior Member
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Join Date: Nov 2003
Location: Texas, US
Posts: 5,835
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Brian is in the ICU at Childrens in Dallas. He was transported early Friday morning by ambulance. He appears to have an infection going on. The antibiotic that he has been on does not seem to be doing the job, so he is being switched to a stronger medication today. Drug sensitivities have not been figured out yet. The good news is that he is not acting sick. He is very playful and happy. No fever, but his oxygen requirement is about 70%. His chest x-ray looks worse then normal right now, too. Hopefully the new antibiotic will kick in and help him out in the next 24 hours. His O2 has to come down to 40% in order for him to come back home. He will remain in the ICU until his O2 requirements start coming down and then will move to a regular room and get discharged from there after he is stable. We were hoping that he would already be on his way to coming home, but it looks like it will be a little longer then we thought.
Sandra is battling a sinus infection and Christopher an ear infection, so this has been very tiring. Please pray for the energy to deal with all this and that Brian is home soon.
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Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.
B & C are surviving triplets. Brooke survived for 1 month.
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07-18-2004, 06:00 PM
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Member
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Join Date: Nov 2003
Posts: 339
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Sandra, cye but hoping brian gets better soon!
Abby
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Abby, mom to Jared (28wk surviving twin), BPD,Bronchomalacia, vent dependent until8/04,Grade 2 subglottic stenosis, gtube, our miracle child! (Decannulated 3/05)
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07-18-2004, 08:27 PM
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Our prayers are with you. We just got home from Hermann Childrens Hospital in Houston.
Misty
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07-19-2004, 01:07 AM
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Member
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Join Date: Aug 2003
Posts: 329
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I hope you guys can get out of there quickly! I know Ariel has had a number of times where she was in the PICU and everyone kept commenting that she didn't act like she was sick. Our kids are so strong.
Karen
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Karen, mom to Ariel born 7/10/02-trached 7/15/02. Chronic lung disease, bronchomalacia, hypopharangial collapse. O2 dependent when asleep. Newly diagnosed with unbalanced translocation, chromosome 7 and 10.
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07-19-2004, 07:12 AM
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Mentor
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Join Date: May 2003
Location: Atlanta, GA
Posts: 4,469
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Many prayers and thoughts for your family in hopes that everyone is better soon! Keep strong!
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Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube.
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07-19-2004, 08:54 AM
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Member
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Join Date: Dec 2002
Posts: 352
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I'm praying that Brian recovers quickly and that he can come home soon!!! Also that everyone else in the house gets well too.
Amy
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Amy - Mother to Corey(4-13-02), 27 weeker (1lb. 10oz.):BPD, Tracheobronchomalacia, Subglottic Stenosis, G-button, been off ventilator since March 2003. Â*Decannulated August 16, 2004 and now g-tube free as of August 10, 2005!!!
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07-19-2004, 12:48 PM
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Member
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Join Date: Apr 2004
Posts: 287
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Sandra, I hope you, Christopher and especially Brian recover quickly - And I hope they figure out the sensitivities soon - I wish they knew a way to do that faster, Our experience is a prime example that that can sometimes take too long...Our prayers are with you.
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Mom to Matt 14; Megan 11;
and ^Eric Jr^, Levi and Vivian, (ID twins and a spare) born at 26 weeks Vivian was trached due to a mishap during her PDA ligation.
**decannulated February 14th, 2006!!**
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07-19-2004, 03:58 PM
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Member
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Join Date: Aug 2002
Location: Delaware, OH just north of Columbus
Posts: 851
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Here's hoping Brian is home soon, healthy and happy.
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Laurie - Mom to Evan (the E-man), 27 week preemie, born 2-23-02, trached at 3 months for severe BPD. Vent dependent until 10 months, G-tube placed at 17 months, oxygen dependent until 2 years, 3 months, decannulated 6-27-04 at 2 years 4 months. The most enthusiastic, positive person I've met.
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07-20-2004, 10:08 PM
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Mentor
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Join Date: Dec 2003
Location: Denver, CO
Posts: 5,387
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Sandra
We are hoping Brian gets released quickly and his O2 requirements quickly decrease. Also, we are hoping everyone gets well soon!!
Hang in there,
Whitney
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Mom to twin boys, Alexander and Aidan born on April 1st, 2003. They are former 25-weekers. Alex was trached from 10-03 to 4-05. Also mom to my lovely new daughter Amelia born August 19th, 2011!
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07-21-2004, 01:06 AM
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Senior Member
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Join Date: May 2002
Posts: 1,782
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Sandra,
I hope that Brian is better and is home soon. Gaithy used to be like that too - acting like she felt great but her lungs would be a mess! I was always amazed. She never acted like she felt bad unless there was a fever. She would be diagnosed with pneumonia, but no fever, seemed fine on the outside. I guess that's common with kids especially...? Anyway, I hope he's well soon. I know being in the hospital is rough.
christy
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Gaithy's Mom:28wk preemie born 8/2000 at 1 LB, IUGR, SGA, ROP, BPD, g-tube/nissen. Trached 4-2001 and LTV950 ventilator until 5-2003. Decannulated 8-3-04
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