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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
06-26-2004, 12:31 PM
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Yea Lili!! Love the pics, especially of her holding the trach! Glad to hear that things are continuing to go well.
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Anne, mom to Evan, born 1/18/01, preemie, TEF/EA repaired, subglottic stenosis, laryngeal web, trach at 6 wks, LTP 8/02, decannulated 5/17/03 , Mic-Key button removed 7/2/04. http://www.tracheostomy.com/trachkids/kids11/evan http://anne-evan.blogspot.com 
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#2
06-26-2004, 12:35 PM
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What a beautiful, beautiful little girl. I'm so thrilled that things are continuing to go well for Lili. I'm sure this is the first of many, many happy occasions!!! Way to go Lili!!!
Jennie and Hannah
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Mommy to Hannah 8/2/03: fmr 25-weeker, trached 11/03 for subglottic stenosis, LTP 4/05, CTR 4/06, LTP 1/07. Decannulated 1/19/2007!! Gearing up for reconstruction #4; Also Mom to Brianna, 2/22/98: fmr 24-weeker, a little dramaqueen. My amazing gifts.
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#3
06-26-2004, 12:47 PM
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Way to go Lili! What a great site and what a happy family.
God Bless and enjoy your trach free summer! Carrie
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 Our little miracle, Nicholas Scott born 08/09/02; CHARGE Syndrome, bilateral cleft lip/palate, congenital heart disease, trach and g-tube, hearing aids. Decanulated!
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#4
06-26-2004, 12:57 PM
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What lovely pics, you all look so happy! Congratulations to your entire family.
Kelly 
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Kelly, mother of , Indira 6 (trach and g-tube)[/color] [/color]and Max 4. [/color]When there is no  you are the reason I bound out of bed. Thank-you for giving me life! See Indie- http://www.tracheostomy.com/trachkids/kids12.htm
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#5
06-27-2004, 11:49 AM
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WOW !!! You all look so happy. Congrats to you Lili.
Doug, Jarita, & Mason
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Doug, father of Mason. Hemangeoma in Trachea. Had Tracheostomy 5-14-2004 at 4 months of age. Decanned 8-19-05. Closure Surgery 5-5-06.
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#6
06-27-2004, 09:05 PM
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oh! This is so wonderful! What a sweetie!!
__________________
Mom to Jack, born with a giant omphalocele on 6/30/02 at 32 weeks. Trached 12/23/02 due to secondary pulmonary hypertension. Decannulated 6/2/05! Strong, strong little man!!
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