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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
06-11-2002, 03:48 PM
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Hi everyone
My son Jimmy is on a vent 24/7. We've had the PM for over a year but haven't used it for over six months. The last time we used it, his vocalizations did not increase just the volume. He has recently started to, in his own way, sing songs with me, so I put it on him and this time he made noises throughout the whole song. He then figured that something was different and starting gagging and throwing a fit. J ust wondering if there were some tips on how to get him used to it or is it just a matter of time. Are increased secretions normal with the valve in?? Thanks Anne, mom to Jimmy Logan ( 2 1/2) Guillian Barre Syndrome, trach, vent dependent, g-tube
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Anne, mom to Jimmy (9) Infantile Axonal Poly Neuropathy, trach, vent dependent, g-tube, scoliosis and spinal fusion with growth rods 
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#2
06-11-2002, 05:18 PM
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We just worked Alli up to wearing it a little at a time. It was slow going at first, 5 minutes 3x a day, but at the end she could wear it all day. We always found she managed her secretions much better with it on, coughing, swallowing or sneezing them away like someone without a trach! Deb
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Grateful thorns have roses 24 weeker now almost 11 years old and in third grade! trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08 [IMG] [IMG]
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