Pediatric Tracheostomy Home Care Guide at Amazon.com


Go Back   Aaron's Tracheostomy Message Board > Pediatric Tracheostomies

Pediatric Tracheostomies For parents and caregivers of children with tracheostomies.  Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

Reply
 
Thread Tools Display Modes
  #1  
Old 04-15-2013, 09:52 AM
NoahsMommy2012 NoahsMommy2012 is offline
Member
 
Join Date: Nov 2012
Location: Leander, Texas
Posts: 180
Default Oral Care

Noah just got his first 2 teeth so I'm wondering about oral care for kids with oral aversions. He doesn't eat anything by mouth but there are still germs in there, right? When my older son got his first tooth, we immediately started brushing his teeth. But for Noah I just don't know what to do for him that he would tolerate. He still gags on stuff about 2-3 times during each speech therapy session which is remarkably better than before but still makes me nervous for cleaning his mouth/ teeth.

Any suggestions would be greatly appreciated. Thanks!
__________________
Check out our blog!
www.amiraclenamednoah.blogspot.com


Devyn- Mommy to Oliver (12/7/10, healthy), Savannah (4/13/14, healthy), and Noah (7/11/12, preemie 36 weeks) tracheostomy (7/31/12), GJ tube (changed from G tube on 8/11/14), severely developmentally delayed, diagnosed with Pelizaeus-Merzbacher Disease 05/13
Reply With Quote
  #2  
Old 04-15-2013, 10:54 AM
Ainsley's Mom's Avatar
Ainsley's Mom Ainsley's Mom is offline
Senior Member
 
Join Date: Feb 2007
Location: Seattle WA
Posts: 6,628
Default

Personally I never used them but our dentist recommended Spiffies. If you can manage to get a finger in his mouth. I guess the benefit to the wipe is that it protects against tooth decay without the foaming of toothpaste. Maybe the fact that they are flavored helps. Personally I just brushed Ainsley's teeth with a wet toothbrush no paste, and she's never had a cavity. Maybe we just got lucky. The other trick the dentist gave is to sit criss cross on the floor and have your child lay with their head in your lap as if he were at the dentist. It really does make it easier to do the brushing, but you still might need a second person to hold the child down if they are really adverse. Also in the early years I always had the suction machine next to me to suction out secretions in the event that she started gagging. Usually it was her own slimy secretions that would lead to retching. The other thing is Ainsley usually prefers to do it herself. You might try giving him one of those baby toothbrushes that is a loop and see if he'll chew on it enough to brush the teeth himself, like this or one made of silicone. Good luck.
__________________
SUSAN - Mom to Ainsley (age 7 - DOB 10/18/06) + Evie (age 13) and Adrian (age 11). Adorable and Trached since 11/06 (scarred vocal cords & OSA) capping with mixed success since 1/09, sagittal craniosynostosis (reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, rare form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery). Decanned 7/21/14.

Blog Link:
http://ainsleyrae.blogspot.com/
Reply With Quote
  #3  
Old 04-15-2013, 12:12 PM
NoahsMommy2012 NoahsMommy2012 is offline
Member
 
Join Date: Nov 2012
Location: Leander, Texas
Posts: 180
Default

Noah doesn't ambulate well enough on his own to put something in his mouth and chew. Good idea for later on if he starts exploring his mouth with his hands. Those Spiffies wipes look like really great though. I think a tooth brush would be too much input for him. I've tried a few times when he first came home to clean his mouth with those little infant finger toothbrushes and he absolutely hates it. I don't want to make him more adverse to things going in his mouth after all of the progress we've made. We wipe his mouth a lot during the day so the wipes might feel a little more natural to him. Thanks so much!
__________________
Check out our blog!
www.amiraclenamednoah.blogspot.com


Devyn- Mommy to Oliver (12/7/10, healthy), Savannah (4/13/14, healthy), and Noah (7/11/12, preemie 36 weeks) tracheostomy (7/31/12), GJ tube (changed from G tube on 8/11/14), severely developmentally delayed, diagnosed with Pelizaeus-Merzbacher Disease 05/13
Reply With Quote
  #4  
Old 04-15-2013, 11:45 PM
Maren Maren is offline
Junior Member
 
Join Date: Oct 2010
Location: Washington
Posts: 82
Default

Have your therapists used toothettes with your child? We have had good success with Owen but did start him early on these. They are soft and so far he had not bitten any of the foam off.
Attached Images
File Type: jpg toothette picture.jpg (17.0 KB, 2 views)
__________________
Maren- mom to Owen born 7/17/10: Born with Pierre Robin Sequence, 5-Q Deletion, significant hypotonia, trach 7/26/10, g-tube and nissen fondo 8/6 (fondo failed),vent patient. Making improvements daily! Also mom to Emma- big sister to Owen. Great helper and adores her little brother! Number 3 arrived and is a great addition. Will soon be big sister to Owen but that is ok!
Reply With Quote
  #5  
Old 04-17-2013, 01:50 PM
IzzyB IzzyB is offline
Member
 
Join Date: May 2011
Location: Orlando, FL
Posts: 481
Default

We started with the foam things that the above poster talked about. He now loves those, especially when teething bad because we put Humphrey's on it. He transitioned from that to a toothbrush with no real issues. My LO doesn't eat by mouth, but ST worked with her finger to do oral motor exercises so he never developed the not wanting anything in his mouth. Some things he does not like other things he is fine with.
__________________
Mom to twins born on 12/15/2010 at 30 wks. Abby is a perfectly healthy stubborn little girl Johnny has left ventricular hypertrophy heart condition, trach, g-tube, and severe developmental delays probably due to suspected stroke during g-tube surgery.
Reply With Quote
  #6  
Old 04-17-2013, 09:22 PM
NoahsMommy2012 NoahsMommy2012 is offline
Member
 
Join Date: Nov 2012
Location: Leander, Texas
Posts: 180
Default

I've seen those foam things in the hospital but wasn't sure I could get them anywhere else. Might be useful for transitioning to a toothbrush like you mentioned. My mom went ahead and ordered the Spiffies teeth wipes so we will start with those and see how he likes them. Thanks!
__________________
Check out our blog!
www.amiraclenamednoah.blogspot.com


Devyn- Mommy to Oliver (12/7/10, healthy), Savannah (4/13/14, healthy), and Noah (7/11/12, preemie 36 weeks) tracheostomy (7/31/12), GJ tube (changed from G tube on 8/11/14), severely developmentally delayed, diagnosed with Pelizaeus-Merzbacher Disease 05/13
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off


All times are GMT -5. The time now is 05:00 PM.


Disclaimer: The information and resources on Aaron's Tracheostomy Page, Aaron's Tracheostomy Message Boards and the Trachties Listserv are for educational purposes only. This web site and its resources are not engaged in rendering medical, pharmaceutical nor therapeutic advice or professional services. The information provided through these pages, message boards and listserv or any links from this web site should not be used as a substitute for professional advice by qualified doctors and/or therapists.

Powered by vBulletin® Version 3.6.8
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.