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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

07-27-2012, 08:59 PM
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Senior Member
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Join Date: Jun 2005
Location: Minnesota
Posts: 4,727
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id band/medical info
I'm still in the market for either an id band or necklace for Mitchell, still also going back and forth with if I want it to be just id or medical as well-basically ET tube size being it is different than the typical kid his age.
Anyway, came across this....found it interesting. I think I"m going to order just a regular one but am really thinking about the interactive. Just thought I'd pass it on. It is 15 for the bracelet and "free" for the 1st year and 10 a year after that first year--sounds like a good $10 spent...but hate just pulling something off of the internet. I'll have to do some more research...but still thought I'd pass it along.
https://www.roadid.com/Builder/Builder.aspx?styleid=42#
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Katie-mom to Mitchell, DOB 12/16/04 trisomy 13 mosaic, severe laryngotracheobronchomalacia trached 5/04, cleft lip and palate DECANNULATED 12/16/10 A GREAT BIRTHDAY GIFT!
www.caringbridge.org/mn/mitchelljohncragg
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07-28-2012, 10:54 AM
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Senior Member
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Join Date: Jan 2009
Location: Troy, MI
Posts: 2,411
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we've always used medicalert.org - they've been around a loooong time, their emblems are easily identified by first responders, and although there's a yearly fee, they keep substantial medical details (meds, doses, doctors, conditions, emergency contacts), and they have a number for first responders to call to get all the details that aren't engraved on the emblem.
Their stainless steel bracelets are impossible to get off your own wrist - it requires help - and last about forever. I'm hard on jewelry & allergic to many metals, and I am on only my 3rd in the 20 years I've worn one (one replaced due to substantial changes to medication allergies, one replaced due to wearing the engraving to the point of difficulty reading it).
For my kiddos I have "sport band" type bracelets that they wear on their ankles, so that we can adjust as they grow. I have a copy of each one's emblem on my keychain too - for a long time, Alexander's was on his ventilator 
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Janet, cruncy pagan automotive engineer mom to Alexander, born at 27 weeks, 1 lb 7 oz | vent/trach/gtube @ 5 months for BPD | g-tube free 7/11, trach free 8/11. Also mom to Bethany born @ 28 weeks, 2 lbs | gtube @ 5 months | trach/vent @ 6 months for BPD, bronchomalacia
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07-29-2012, 09:23 AM
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Senior Member
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Join Date: Oct 2005
Location: St. Louis, MO
Posts: 2,823
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We just used a regular medical bracelet without a service contract. The id has his name and reads "reconstructed airway" and to use a specific size ET tube--since his airway is smaller, too. On the back we engraved our cell phone numbers and his dr's name and phone number.
My reasoning for not having the service is that if he is in respiratory distress, they just need to know that the airway has been reconstructed and that they should intubate with a smaller than normal size tube. There's no need for them to call an 800 number answering service to find out every medical condition/procedure/medication he's ever had. The first responders just need to know that the airway is smaller so they can save him!
I like the rubber bracelet. The chain bracelets are annoying for Nathan. In fact, he won't wear his on his ankle or wrist right now. I might try the one you found!
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Kristy
Nathan is 7! Trached at 2 hours old--laryngeal atresia. Double stage LTP 5/26/06, double stage LTP 1/23/09 and single stage LTP 4/21/09. Airway has restenosed, but we're still trach free 9/2012. Ding dong, the trach is gone!!
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07-30-2012, 07:11 AM
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Join Date: Mar 2010
Location: Virginia
Posts: 344
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The RoadID ones are really cool. My FIL has one because his resting heart rate is 28-32 (he is a 71yo marathon runner/tri-athlete).
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Jenna - Adoptive Mom of Dovid (traumatic brain injury, vent dependent) 12/09/2005 - 03/28/2011 and Foster Mom of Lil P (ASDx2, VSD, pulmonary stenosis, RTA, FTT).
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07-30-2012, 01:12 PM
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Senior Member
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Join Date: Jun 2005
Location: Minnesota
Posts: 4,727
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Kristy,
I was thinking the same thing-I don't know that Mitchell has enough medical issues to really justify paying-though it is cheap. lol-never thought I'd say he doesn't have enough medical stuff going on.
I like too that you can get a couple different colors and they can switch them out. I think I am going to go with this one. It'll have his name our contact numbers and probably ET tube size with reconstructed airway-which is what his ENT had suggested. I don't know that anything else changes how he is treated in an emergency. I may wait until this next heart check which is in a week-just to make sure.
I guess I am looking more for an id band because he can't talk vs med band though I do want ET size on there being it is a tad smaller.
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Katie-mom to Mitchell, DOB 12/16/04 trisomy 13 mosaic, severe laryngotracheobronchomalacia trached 5/04, cleft lip and palate DECANNULATED 12/16/10 A GREAT BIRTHDAY GIFT!
www.caringbridge.org/mn/mitchelljohncragg
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08-05-2012, 09:26 AM
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Join Date: May 2011
Location: Chicagoland
Posts: 537
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I was just thinking yesterday I need to get a medical ID for Aldo. Then I see this thread. I don't know why I never thought about it before. I just want to get something simple like Kristy has for Nathan. I think in an emergency the airway is the main issue help needs to worry about.
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 Ana, mom to Aldo. Full term on 10/10/2010. Congenital Anterior Glottic Web & Subglottic Stenosis. 10/29/2010 Single stage LTP; web removed. Reconstruction surgery was a success but Aldo developed edema below the vocal chords and continued struggling to breath. Tracheostomy on 04/01/2011. Eats by mouth. High blood pressure resolved (it was probably due to hard breathing).
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