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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

07-03-2012, 10:37 AM
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Senior Member
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Join Date: Feb 2007
Location: Seattle WA
Posts: 6,493
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MyAirvo Q- Water Use & Temp
I'm starting to wonder if our new MyAirvo is defective. We are the first in our state to try it so calling the DME won't help. I felt like it is too warm, and as I said in my other post, the temperature is not adjustable. The thing is using 1/2 a hanging bag of water every night. For those who have this machine, is that normal? It's just SO much more than our HC-500 used. TIA.
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SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery).
Blog Link: http://ainsleyrae.blogspot.com/
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07-07-2012, 09:38 AM
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Member
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Join Date: Jul 2011
Location: St. John's NL
Posts: 111
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Yes, it's set at 37 and it can't be changed. It's definitely different but I assure you that it's better! It's the same temperature that our lungs are supposed to be. We leave ours on all day as he's still young and naps all the time and the Airvo will go through 1000ml in a day. It seems like a lot of humidity but don't forget that it's a large leak out of the front and the water droplets are fine not large so it seems less invasive and it's not drowning your child with humidity!
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Son Felix - Born 12/26/10 at 25/6. Excessive damage to vocal chords from ET tube. Trached on 05/24/11 at Sick Kids in Ont. Canada. NG tube (possible pending G-Tube). Superior Vena Cava Syndrome due to blood clot in PICC line.
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07-07-2012, 01:07 PM
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Senior Member
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Join Date: Feb 2007
Location: Seattle WA
Posts: 6,493
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Quote:
Originally Posted by Felix's Mom
Yes, it's set at 37 and it can't be changed. It's definitely different but I assure you that it's better! It's the same temperature that our lungs are supposed to be. We leave ours on all day as he's still young and naps all the time and the Airvo will go through 1000ml in a day. It seems like a lot of humidity but don't forget that it's a large leak out of the front and the water droplets are fine not large so it seems less invasive and it's not drowning your child with humidity!
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Thanks. It's good to know that indeed they do use that much water. It's interesting, but I feel like Ainsley isn't as humidified as she was with the HC-500. But it hasn't been long enough for me to judge the effect. Maybe it's a good thing. I always wondered if the HC-500 was "too much". It just seems odd that for as wet as the HC-500 was, it used a fraction of the water that the MyAirvo is using. One bag used to last us about a week. We are using 4 times as much water.
__________________
SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery).
Blog Link: http://ainsleyrae.blogspot.com/
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07-11-2012, 06:16 AM
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Member
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Join Date: Jul 2011
Location: St. John's NL
Posts: 111
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Are you liking any of he benefits? Have you gotten used to the silence?!
__________________
Son Felix - Born 12/26/10 at 25/6. Excessive damage to vocal chords from ET tube. Trached on 05/24/11 at Sick Kids in Ont. Canada. NG tube (possible pending G-Tube). Superior Vena Cava Syndrome due to blood clot in PICC line.
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07-11-2012, 11:27 PM
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Senior Member
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Join Date: Feb 2007
Location: Seattle WA
Posts: 6,493
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Quote:
Originally Posted by Felix's Mom
Are you liking any of he benefits? Have you gotten used to the silence?!
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After five years of listening to that compressor I don't know how long it might take for me to get used to this thing! I keep looking at it wondering if it's working it's so quiet. Actually it's harder to ignore Ainsley's every little move. I think we will eventually get used to the silence and it will be heavenly. Already I love it, but it still feels weird. Maybe it's some form of PTSD.
Actually the other thing is that she isn't needing hardly any suctioning. I have to wonder if we weren't just pumping volumes of water into her lungs before (and basically creating secretions). Dry isn't good, but there are NO secretions. I'm kind of waiting for the other shoe to drop, and for her to end up with some thick secretions, or lung problems but there is no sign of anything like that.
__________________
SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery).
Blog Link: http://ainsleyrae.blogspot.com/
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