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Old 06-21-2012, 01:39 PM
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Originally Posted by Kate View Post
Ya, I think we're just kind of at a point of just trying to re-group and figure out where our focus should be. It has been on my mind a ton. Sometimes I think I live in my bubble and just ignore the outside world-Mitchell going to school all day every day and interacting more with "typical" kids I've noticed it more-him being non-verbal. Perhaps it bothers me more because he can't just say what he wants-he has to get his stupid talker out....that said-I'm so fortunate that he truly is SO gifted with his talker. Making sentences like, "I went to the dentist" All different buttons. But yes, I'm so with you-if I could get him to do a few words..mom,dad, more...just the basic. That said-I really feel like if he gets that connection he would take off. Mitchell will be all or nothing I think.

Switching therapists is what is bringing this all on...and the big "oral motor" question-do oral motor exercises help with speech. Our therapy center seems to always go back on that they do-they focus on them and they do all the classes and conferences on them, "talk tools" "beckman" all of those. SO, when going to the clinic and having this write up and them saying that really there is just no link at all....lets just say it jumbled up a lot of questions.

I think I'm going to take some time off of therapy. Now hows that for a complete change of thought? My reasoning...we are switching therapists. We can't get into our new therapy until Fall-September I think. This therapy will focus on his device but of course we will not leave out verbal. We will be gone for 2 weeks in July and then here and there for appointments-I'm just in a "whats the point mode?" Burnt out perhaps? So I'm thinking if we take July and August off and start fresh in Sept. Keeping in mind he has summer school through July so he will get some-just not in the home.

I completely agree with you though...if he could talk he would. Sounds like in many ways we're in similar spots Which reminds me-how is Ainsley's new device? Ours is going on 3 years and we may be in the market for a new one after awhile.
I love it! Other than that I spent hours programming it Saturday and lost all my work. It was my fault though. I have had too much going on between Cincinnati and her eyelid surgery last week, but I intend to put together a video to post. I'll let you know when I've done that. Then maybe you can see if you'd like it. It is great that Mitchell is so good with his device. And FYI I totally understand your thinking about all this.
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SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery).

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