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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

06-18-2012, 03:44 PM
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Join Date: May 2011
Location: Orlando, FL
Posts: 457
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Susan - I would check again. We have Medicaid, but I thought the rules were similar for Medicaid as they are KidCare and we were told they pay for one a quarter. We were originally getting one a month on Medicaid, but then later they said the Bivona's have been changed to once a quarter. Also, you are in CMS, right? I have been told they sometimes pay for extra.
Check eBay, we found some on there cheaper, but they don't always have them. Especially that small.
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06-18-2012, 05:10 PM
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Member
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Join Date: May 2011
Location: West palm beach
Posts: 580
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Quote:
Originally Posted by IzzyB
Susan - I would check again. We have Medicaid, but I thought the rules were similar for Medicaid as they are KidCare and we were told they pay for one a quarter. We were originally getting one a month on Medicaid, but then later they said the Bivona's have been changed to once a quarter. Also, you are in CMS, right? I have been told they sometimes pay for extra.
Check eBay, we found some on there cheaper, but they don't always have them. Especially that small.
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Awesome ideas! Thank you!
We never had an issue before the downsize because we had sooooooo many extra 3.5's. Harrison was admitted to the hospital (for procedures and such) quite a bit his first year trached, and we came home with an extra 3.5 (or 2) almost every admission. Now that he is healthy and has downsized, we are running into the issues.
We did just check with our insurance and they are claiming that they only cover 1 a year, but I didn't think to check with CMS. I know that they often help with travel costs for out of town appointments, gas cards, hotels, flights, etc., so I can imagine they might be able to give us an extra trach or 2 Great idea! I'm also going to check with the ENT's office to see if he has extras. Checked with the pulmo..no luck, but the ENT might have some lying around.
Thanks again 
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 SUSAN-mom to Harrison, born full-term(11/1/10) with an undiagnosed congenital diaphragmatic hernia (CDH), hypoplastic right lung (caused by hernia), trached at 4 months, g-tube and fundo at 6 weeks. Home in March 2011. Weaned completely off of the vent in July  Wearing PMV 24/7, 02 at night, failed decannulation in October. Hoping for better results next time!
www.caringbridge.org/visit/harrisonsnow
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06-19-2012, 03:34 PM
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Member
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Join Date: Mar 2011
Location: Mississippi
Posts: 135
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Quote:
Originally Posted by Sweet Harrison's mommy
Isn't it ridiculous?!? Harrison is on Florida kidcare (basically, a medicaid HMO), but florida is notoriously bad with special needs funding. Nursing hours, medicaid, supplies, etc...they are one of the worst states to provide support for those who need it.
Harrison is in a Bivona, 3.0, PEDS. He cannot tolerate Shiley for some reason. I put a post on the medical supply page on facebook, hoping someone has extras. If not, we are just going to suck it up and buy a couple full price, I guess. No other choice. I do have 1 trach mom friend who is sending me some 2.5's, so at least we will have the size smaller in case of an emergency.
What kind of HME does Bodie user? We have about 8-10 Humid-vent mini's that Harrison doesn't use. He never tolerated an HME.
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Bodie uses a Bivona 3.0 NEO. We have the T-shaped HME's with the green sponge filter (unsure of the name). We are re-using after cleaning but I am supposed to be getting a fair sized re-supply from another forum member soon.
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06-21-2012, 09:13 PM
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Senior Member
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Join Date: Mar 2006
Location: Atlanta, GA
Posts: 2,123
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Quote:
Originally Posted by Momoffive
Ditto as per Davidsmom - that's the process right from the Bivona insert that we have done for years, (apart from the fact that they say to do the cleaning first, then later, i.e. just prior to use to use the boiling water). We've never had any kind of trach infection or stoma irritation etc. from this method!
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Exactly. Going on 6.5 yrs of being trached.
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Trish
PROUD Mama to TWO 26 wkrs
1055 g- Olivia Forever 7, trached for 6.5 yrs, gtube, iv port, BPD, Hydro/VA Shunt, Epilepsy, CP, Fought Hepatoblastoma for 28 months
688 g- Nathaniel is my bright 10.5yo
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07-18-2012, 05:34 PM
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Junior Member
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Join Date: Jun 2012
Location: Australia
Posts: 7
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I'd just like to point out that all the methods already mentioned are forms of disinfection, not sterilisation.
We follow the TRACOE procedure with our child, which is basically just cleaning with the aid of an enzymaticic solution. After all the the upper respiratory tract isn't a sterile environment.
http://www.tracoe.com/download/18/ho...oe-larynx.html
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