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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
05-31-2012, 04:36 PM
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naked crawling!
I solved a problem with a low tech solution.
James just started crawling. He crawls like a gorilla - top half up high, bottom half frog legs scraping the ground. He has spinal cord injury so his bottom half has low tone. PT has been all on his case to pick his butt up off the ground and crawl more normally. Nothing has worked, until... I let him crawl around naked before bath yesterday. He didn't like the feeling of his private parts dragging on the carpet, so he picked his butt up and crawled normally. I guess some parts don't feel too good for carpet burn. Buahahahahaha I solved a problem!
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Jenny McLelland Mom to Josie (born 12/18/09) (the healthy one) James (born 04/12/11). James has brachytelephalangic chondrodysplasia punctata (dwarfism with short stubby fingers and severe mid face hypoplasia, hence very small nasal passages, hence the trach), G-tube, cervical spine instability at C1/C2 pending skull to C7 spinal fusion. 
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#2
05-31-2012, 04:46 PM
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 Whatever it takes, huh?! Too funny! Thanks for the laugh. Though I'm afraid that tactic might backfire on you. 
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SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery). Blog Link: http://ainsleyrae.blogspot.com/ 
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#3
05-31-2012, 05:12 PM
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So funny!!! Whatever works!
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 Mom to Aven, healthy as anything, 5 and Caleb ,born 39 weeks,9.9.11, Trach, Gtube,Nissen,10.6.11, Mandibular distraction 8.8.11,tonsils/ adenoids 2/27/13, DECANNED 4/18/13!!no official diagnoses,profound hearing loss in left ear,cardiac abnormalities,extra T4 vertebrae. Pierre Robin Sequencehttp://mycalebslife.blogspot.com "For you created my inmost being; you knit me together in my mother's womb.. I am wonderfully made." Psalm 139:13-14
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#4
06-01-2012, 05:23 PM
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Love it. Just stay out of the line of the "back fire."
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Suzanne Mom to: Berkeley (June 2002),Griffin (July 2004), and Parker (November 2006) My family blog: http://www.mylifewithboys.typepad.com Parker's LTP Blog: www.parkersplace.wordpress.com 
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#5
06-02-2012, 01:03 PM
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Too funny! Way to go James (and mom too)!
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 Alex, mom to Samantha born 38 weeks on March 7th, 2011 with Congenital Nasal Pyriform Aperture Stenosis, trached 3.30.11. Grade I Congenital SGS, diagnosed 11/30/11. Also mom to big brother Luke (3).
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#6
06-07-2012, 03:29 AM
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 lol
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  Life is not measured by the number of breaths we take, but by the moments that take our breath away. Mum to an ex 24wk prem now 4 yrs old with Chronic lung disease, chryocid web, immobile vocal cords and vision impaired from ROP. Decanned 10th March 2011 , plan to repeat LTR due to body reabsorbing graph, date unknown 
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