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Pediatric Tracheostomies For parents and caregivers of children with tracheostomies.  Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

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  #11  
Old 05-18-2012, 08:44 PM
Sweet Harrison's mommy Sweet Harrison's mommy is offline
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It sounds like you've got a good plan now! I think if I were you, I would worry about whether or not his lungs are clear. The colored snot, without being accompanied by fever and other symptoms, wouldn't terribly concern me, but junky lungs would.

I TOTALLY get the "feeling like you'll wait forever if you wait for him to be well" thing....Harrison always seem to be getting over or starting up some sort of minor cold. I do think I would wait for healthy and clear lungs, though.

Hoping that he has a good weekend and feels ready for the procedure next week!!! Let's get that boy using his PMV
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SUSAN-mom to Harrison, born full-term(11/1/10) with an undiagnosed congenital diaphragmatic hernia (CDH), hypoplastic right lung (caused by hernia), trached at 4 months, g-tube and fundo at 6 weeks. Home in March 2011. Weaned completely off of the vent in July Wearing PMV 24/7, 02 at night, failed decannulation in October. Hoping for better results next time!
www.caringbridge.org/visit/harrisonsnow
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  #12  
Old 05-19-2012, 05:30 AM
principe principe is offline
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The bronch being done by a different surgeon is no problem. As long as they are in the same hospital they look up the notes themselves. They just don't do the bronch just like that. They look at previous procedures, notes, etc and do a follow up bronch. The issue here is the congestion and I read they told you to rescheduled because of it. Makes sense. I know it gets stressful. Once I broke down crying at the pediatric clinic for whatever reason. Just wait till he's better and thinks would come along.
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Ana, mom to Aldo. Full term on 10/10/2010. Congenital Anterior Glottic Web & Subglottic Stenosis. 10/29/2010 Single stage LTP; web removed. Reconstruction surgery was a success but Aldo developed edema below the vocal chords and continued struggling to breath. Tracheostomy on 04/01/2011. Eats by mouth. High blood pressure resolved (it was probably due to hard breathing).
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