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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

04-24-2012, 10:21 AM
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Join Date: Sep 2008
Location: New Jersey
Posts: 147
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Gravity vs. Pump Feeding
Jorie has been on essentially the same feeding schedule for the last 3 years - she takes no nutrition orally and all her feeds currently run through the pump. She gets 4 daytime feeds of 150 mls over 45 mins and a continuous night feed for 8 hours.
Recently the rechargable battery on our crappy home pump bit the dust, so we have to have it plugged in to use it, which is tremendously inconvenient. I have the DME sending me a new one, so its not really an issue, but over the weekend while I was waiting for the new pump I decided to do her daytime feeds by gravity....and she was FINE. No excess gas, or any perceptible discomfort.. and she got the feeds in 10-15 minutes, total. I figure since she has grown significantly over the last 2 years and the volume hasn't really changed, the gravity feeds shouldn't be a problem.
Looking for advice on what to look for to see if she is better off getting the bolus feeds through the pump over a longer period of time - or if she can truly handle them by gravity no problem. She has a partial nissan, so she can throw up, but she has never had major vomiting issues, and I saw none this weekend.
Of course the nurses can't switch to gravity unless we get a Dr order, and I'm not sure what the GI/Nutritionists's reaction will be. Any guidance?
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Gretchen, mom to Jorie born 5/23/08, looking for diagnosis. Trach and GTube August 2008. Home since 1/14/09, Been almost completely vent free for the last two months!! Left hip osteotomy 11/19/09, right hip osteotomy 12/17/09 - spica cast free now and trying to get those little legs working.
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04-24-2012, 10:24 AM
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Location: Troy, MI
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Our nutritionist prefers gravity feeds if the child tolerates them.
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Janet, cruncy pagan automotive engineer mom to Alexander, born at 27 weeks, 1 lb 7 oz | vent/trach/gtube @ 5 months for BPD | g-tube free 7/11, trach free 8/11. Also mom to Bethany born @ 28 weeks, 2 lbs | gtube @ 5 months | trach/vent @ 6 months for BPD, bronchomalacia
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04-24-2012, 11:34 AM
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Location: Pennsylvania
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We switched our daytime feeds for Cillian to bolus slow push feeds and he does fine. We do 120 ml's 4 x day of Blended Diet and we slow push 30 cc's every 15 min. Its nice because we are trying to cut out some small amounts now to see if he understands being "hungry" and asking for food. So far, he will ask for food, but will still only eat the pureed stuff. He will put solids in his mouth, but that's it. Good Luck!!!
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 Kara. Mom to Bailey (3/14/2006), Mason Premie (09/17/2007), and Cillian - Digeorge Syndrome, Tetralogy of Fallot, ASD, VSD, Pulm artresia, non functioning pulm valve (replaced with human homograft valve 8/2011), mild tricuspid valve failure (repaired 8/2011), tracheostomy, g tube, nisson fundo, double hernia surgery, submucosal cleft palate, aortic stents, pulm hypertension, tracheobronchial malacia born 1/10/2009. Three sweet angels.
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04-24-2012, 11:44 AM
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Join Date: Dec 2009
Location: Indiana
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We split his feeding into 1/3's, used to into 1/4's and gave it every 15 minutes by syringe (over a minute or two). So, it's sort of a mix. Maybe start there, and see if you can get it closer together.
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Mom to Micah- born 8/31/2009- Diagnosed with Cervical/Facial Lymphatic Malformation in utero. Trach/G-tube at 5 weeks.
www.littlemicah.blogspot.com
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04-24-2012, 12:52 PM
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Location: New Jersey
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Is pushing through a syringe better than hanging the feed by gravity? Obviously you can control the timing a little better that way...
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Gretchen, mom to Jorie born 5/23/08, looking for diagnosis. Trach and GTube August 2008. Home since 1/14/09, Been almost completely vent free for the last two months!! Left hip osteotomy 11/19/09, right hip osteotomy 12/17/09 - spica cast free now and trying to get those little legs working.
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04-24-2012, 01:31 PM
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Less hassle is my big reason  Honestly, some love the pump to do everything, fast or slow. Personally, i go crazy and only use it at night. He's so mobile it's easier to have him still a few (less then 3) minutes at a time, every 15 min than to have him in one spot. That being said, i'm more conservative while he's napping, since he's laying down.
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Mom to Micah- born 8/31/2009- Diagnosed with Cervical/Facial Lymphatic Malformation in utero. Trach/G-tube at 5 weeks.
www.littlemicah.blogspot.com
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04-24-2012, 01:38 PM
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Join Date: Jan 2009
Location: Troy, MI
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We never used Alexander's pump - a straight gravity feed was less time than setting up the pump.
With Bethany we're a bit more conservative, and give her bolus in 3 parts, 15 minutes or so apart, venting before each part. Feeding that same feeding on a pump over an hour gets us instant puking, because we haven't gotten the air out of her belly.
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Janet, cruncy pagan automotive engineer mom to Alexander, born at 27 weeks, 1 lb 7 oz | vent/trach/gtube @ 5 months for BPD | g-tube free 7/11, trach free 8/11. Also mom to Bethany born @ 28 weeks, 2 lbs | gtube @ 5 months | trach/vent @ 6 months for BPD, bronchomalacia
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04-24-2012, 06:57 PM
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Join Date: Mar 2011
Location: Cicero, NY
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We had a similar situation. Bradley's pump broke on Christmas Eve so we did the gravity feeds until we got a new one. He did great on them so we kept his day feeds as gravity and he still gets a night feed with the pump. It's so much nicer to not have him hooked up to the pump when hes up during the day. All his doc's were OK with it as long as he was tolerating it 
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Carrie-Mom to Bradley born 2/16/11 full term , Pfeiffer Syndrome Type II, trach 3/21 , off of vent 3/26, cranio surgery 3/31/11, Fundoplication, Pyloroplasty & G-tube 4/25/11, MicKey Button 5/9/11, Home 5/24/11 Removal of lower occipital skull bone and temporary shunt 7/7/11, Forehead/Orbital Advancement 7/11/11, Permanent Adjustable Shunt 7/18/11.
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04-24-2012, 11:25 PM
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Join Date: Jan 2007
Location: Colorado
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Quote:
Originally Posted by grtchnk
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Of course the nurses can't switch to gravity unless we get a Dr order, and I'm not sure what the GI/Nutritionists's reaction will be. Any guidance?
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Ayden couldn't tolerate gravity, so that is why we never did. He only tolerated 30cc of water max at a time, otherwise it would come back to us.  Now he can tolerate much more and we did bolus feeding where we push via syringe instead of gravity. So I would say, if she tolerates it, why not. The only thing you might need to watch, is should she get a cold, you may have to slow down.
Any nurses cannot switch to gravity, but why can't you as a family switch? There is no need for Drs order, if you don't have nurses. (we switched from pediasure to a BD without any Dr approvals) 
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Dawn

former 26 weeker -- 4/2006 -- trach, g-tube, nissen; came home 1/07 vented 24/7; Successfully decanned 8/8/2008 - 
Follow decan at: http://sleepy-dogs.blogspot.com/
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04-26-2012, 11:33 AM
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Join Date: Feb 2007
Location: Seattle WA
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We use gravity for formula or a syringe for the BD because it's usually too thick to gravity feed. We did a lot of testing because of Ainsley's vomiting, and she was on continuous, then was gradually switched over to pump boluses, then gravity. This was all a LONG time ago. In fact I recall that she actually seemed a bit better doing gravity boluses than with the pump was a bit surprising. Since it didn't cause any problems and she tolerated it, we switched. I also didn't want to be feeding during sleep. And I was SO happy to be free of machines. It also cuts back on the medical waste not having to use bags.
I think if you tried it and it appears to work for Jorie then there is no problem. Personally I didn't like "hanging a bag". I couldn't figure out how to make it work since it has to be higher than the stomach and we always wanted Ainsley to be able to eat at the table. It might be a good idea to try different methods on your own before you get the orders and have the nurses switch.
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SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery).
Blog Link: http://ainsleyrae.blogspot.com/
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