We are capping and going for decann in May. I also had Sam fall asleep with her cap on and she dropped her sats to the 92-93 range, but she did work to breath. Only put it on for a minute, it was to uncomfortable to watch. She is capping most of the time she is awake, so I know she can breath without the trach, but I don't know about how she will do when she isn't consciously breathing. I am hoping it is the trach and maybe a little bit of granulation tissue causing the struggle during sleep. From what I read about sleeping capped is that is more difficult and not uncommon to be noising, I am not certain whether the trach's obstruction can cause snoring or if the OSA is culprit. Sam will most likely have some OSA when decanned, but not severe enough to remain trached. I know I was no help, but good luck with the study. I hope everything goes really well!
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Alex, mom to Samantha born 38 weeks on March 7th, 2011 with Congenital Nasal Pyriform Aperture Stenosis, trached 3.30.11. Grade I Congenital SGS, diagnosed 11/30/11. Also mom to big brother Luke (3).
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