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Old 02-19-2012, 11:45 PM
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jennymclelland jennymclelland is offline
Join Date: Aug 2011
Location: Caruthers, CA
Posts: 279
Default Obsessively organized trach room

I'm pretty OCD, so I thought I would share the setup. I think it might help to see other people's setup, so I could poach good ideas.

YouTube Video
ERROR: If you can see this, then YouTube is down or you don't have Flash installed.
Jenny McLelland

Mom to Josie (born 12/18/09) (the healthy one) James (born 04/12/11). James has brachytelephalangic chondrodysplasia punctata (dwarfism with short stubby fingers and severe mid face hypoplasia, hence very small nasal passages, hence the trach), G-tube, cervical spine instability at C1/C2 pending skull to C7 spinal fusion.

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Old 02-20-2012, 09:31 PM
mommom_of_4 mommom_of_4 is offline
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Join Date: May 2011
Location: Delaware
Posts: 75

Thanks for sharing....maybe one day I will post a video of Katies room. It so cool to see how other people organize things. I love the hook things! Such a good idea.
Susan, Mom mom (aka grandmom) to Tyler, 12/2006. Alexis, Brianna, and Katie (trach-4 months old, missing/fused ribs-VEPTR surgery) 10/2008
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Old 02-21-2012, 07:35 PM
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jamie jamie is offline
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Location: galt california
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FANTASTIC ROOM! i love how you insulated the mist machine, and that green is my all time favorite color.
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Old 02-22-2012, 11:32 AM
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Kamilah's Mommy Kamilah's Mommy is offline
Join Date: Apr 2009
Location: California
Posts: 213

Wow! I really love how well organized you have everything. I will use some of your ideas to organize Kamilah's room a little better. Thanks for posting this!
ROSA, mom to Kamilah; born on Dec 18 2008. Craniosynostosis
Nissen & G-tube: Feb 13 2009
Trach: Apr 09 2009
Shunt: Jan 21 2010
Giant Cell Granuloma of the mandible: July 30 2010, (it grew back )
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Old 02-22-2012, 05:45 PM
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twintotwin twintotwin is offline
Join Date: Jul 2004
Location: USA
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Nice job. We had a similar set-up (times two) but we actually didn't mind the sound of the PSI converters. It was white noise that was very comforting to my guys.
So the IV're not allowed to return it? Does that mean you own it? Maybe give it away or throw it away? I can't stand to keep useless things around. Craig's List?
Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002).
Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!

The Birthday Boys by TwinTransfusion, on Flickr
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Old 02-22-2012, 08:34 PM
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Melisande Melisande is offline
Join Date: May 2004
Location: Missouri
Posts: 3,188

Wow! That's quite a set up! It should be helpful to newbies! Very coordinated too!
Melisande H. Mother to The Preeminent Grand Poohba Donovan (5/27/03), still some "resolving" apnea, on the autism spectrum and some cerebellar malformations. Trached since he was 6 weeks old. Recently DECANNULATED 4/16/09!! Big brother to Conrad!

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