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#1
02-19-2012, 10:45 PM
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Obsessively organized trach room
I'm pretty OCD, so I thought I would share the setup. I think it might help to see other people's setup, so I could poach good ideas.
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Jenny McLelland Mom to Josie (born 12/18/09) (the healthy one) James (born 04/12/11). James has brachytelephalangic chondrodysplasia punctata (dwarfism with short stubby fingers and severe mid face hypoplasia, hence very small nasal passages, hence the trach), G-tube, cervical spine instability at C1/C2 pending skull to C7 spinal fusion. 
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#2
02-20-2012, 08:31 PM
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Thanks for sharing....maybe one day I will post a video of Katies room. It so cool to see how other people organize things. I love the hook things! Such a good idea.
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 Susan, Mom mom (aka grandmom) to Tyler, 12/2006. Alexis, Brianna, and Katie (trach-4 months old, missing/fused ribs-VEPTR surgery) 10/2008
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#4
02-22-2012, 10:32 AM
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Wow! I really love how well organized you have everything. I will use some of your ideas to organize Kamilah's room a little better. Thanks for posting this!
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ROSA, mom to Kamilah; born on Dec 18 2008. Craniosynostosis Nissen & G-tube: Feb 13 2009 Trach: Apr 09 2009 Shunt: Jan 21 2010 Giant Cell Granuloma of the mandible: July 30 2010, (it grew back  )
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#5
02-22-2012, 04:45 PM
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Nice job. We had a similar set-up (times two) but we actually didn't mind the sound of the PSI converters. It was white noise that was very comforting to my guys.
So the IV pole...you're not allowed to return it? Does that mean you own it? Maybe give it away or throw it away? I can't stand to keep useless things around. Craig's List?
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002). Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!  The Birthday Boys by TwinTransfusion, on Flickr
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#6
02-22-2012, 07:34 PM
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Wow! That's quite a set up! It should be helpful to newbies! Very coordinated too!
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Melisande H. Mother to The Preeminent Grand Poohba Donovan (5/27/03), still some "resolving" apnea, on the autism spectrum and some cerebellar malformations. Trached since he was 6 weeks old. Recently DECANNULATED 4/16/09!! Big brother to Conrad! 
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