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  #1  
Old 02-08-2012, 09:50 PM
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Yoanna Yoanna is offline
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Talking Decannulation tomorrow!
Hey everyone, so long time no chat! With all fatemahs appointments and me going back to school full time I havent had much time to visit the board

Just thought I would drop a line and let you all know.... Fatemahs decannulation is tomorrow!!!!!!!!!! Yay!!! Looking forward to hearing my daughter talk for the first time!!! thanks for all the support over the past couple years! Hope to post soon again with good news!
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~Mom to Fatemah, born @ 28 w/gestation in 2009 w/grade 4 IVH on l/r sides of brain, post-hemorragic hydrocephalus - currently has VP shunt, beckwith-wiedemann syndrome, macroglossia (corrected with surgery 01/10/2011), tracheostomy, broncho-pulmonary dysplasia, slight hemiparesis on right side, g-tube, myringotomy w/tubes 01/10/2011, malignant epithilial tumour (surgery 06.03.2011), cyst on brain stem (surgery 06/06/2011), diagnosed diplegia Cerebral Palsy[/b])~
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  #2  
Old 02-09-2012, 08:50 AM
Felix's Mom Felix's Mom is offline
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This is wonderful news!!! Good luck
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Son Felix - Born 12/26/10 at 25/6. Excessive damage to vocal chords from ET tube. Trached on 05/24/11 at Sick Kids in Ont. Canada. NG tube (possible pending G-Tube). Superior Vena Cava Syndrome due to blood clot in PICC line.
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  #3  
Old 02-09-2012, 11:02 AM
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JessicaLalonde JessicaLalonde is offline
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Welcome back and GREAT NEWS!! Good luck tomorrow!! Keep us posted!!
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Mom to David, Born Jan 1/2010, Trached Feb 11, 2010 for Bilateral Vocal Cord Paralysis and Laryngotracheobroncho malacia... Currently working on decann attempt #3
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  #4  
Old 02-09-2012, 11:29 AM
san123 san123 is offline
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Very good news!! Good Luck!
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Old 02-09-2012, 11:36 AM
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kadiera kadiera is offline
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Good luck!
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Janet, cruncy pagan automotive engineer mom to Alexander, born at 27 weeks, 1 lb 7 oz | vent/trach/gtube @ 5 months for BPD | g-tube free 7/11, trach free 8/11. Also mom to Bethany born @ 28 weeks, 2 lbs | gtube @ 5 months | trach/vent @ 6 months for BPD, bronchomalacia

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  #6  
Old 02-09-2012, 08:31 PM
sadiebean sadiebean is offline
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Very exciting! I hope things went very well!
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Mom to Paul, 3 years old, vented due to central apnea, very severe Chiari II, sacral-level spina bifida, g-tube, autonomic dysregulation with significant temp dysregulation, hypertension. Beautiful, happy child.
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  #7  
Old 02-10-2012, 10:05 PM
SammyJo SammyJo is offline
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Hope everything went well!
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Alex, mom to Samantha born 38 weeks on March 7th, 2011 with Congenital Nasal Pyriform Aperture Stenosis, trached 3.30.11. Grade I Congenital SGS, diagnosed 11/30/11. Also mom to big brother Luke (3).
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  #8  
Old 02-11-2012, 01:45 AM
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jamie jamie is offline
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hoping all is going perfectly
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Old 02-11-2012, 09:00 PM
mommom_of_4 mommom_of_4 is offline
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Good Luck!!!!
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Susan, Mom mom (aka grandmom) to Tyler, 12/2006. Alexis, Brianna, and Katie (trach-4 months old, missing/fused ribs-VEPTR surgery) 10/2008
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Old 02-14-2012, 06:21 AM
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JWorthington JWorthington is offline
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Hope it went well xx
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Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14).
I am first and foremost a child
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