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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

02-06-2012, 12:46 PM
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Junior Member
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Join Date: Jun 2011
Location: Virginia
Posts: 73
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Bleeding after Bronch?
Hi,
Zachary was supposed to have surgery to have a granuloma removed, last week, but once the ENT did the bronch he decided not to remove it as it was only blocking 30% of the airway. He did not want to risk anything else (scar tissue) since 30% was not that bad. Zachary was still talking around it with the PMV on. He seemed in no way bothered by the granuloma. The ENT hoped with the new trach (shiley to bivona) that the granuloma would get better or at least not get worse and 30% blockage would not prohibit decann (we are at least a year away from that).
Anyway, the bronch was last Wed. We spent a night in the hospital for observation and everything was fine. We were home for a few days and started seeing blood again on Saturday. We've emailed and called our ENT but have not hear back yet.
It seems weird to me that the blood happened days after the procedure. We are also getting very small bits of tissue which is of course the most concerning part.
Is blood normal after a bronch?
Also, Zachary is a tiny guy, weighs just 15 lbs. The ENT put in a neo bivona but the "trach" nurse wanted to upsize him to a ped trach. We did that. Zachary did not tolerate the trach change well at all - I am scared to do the next one. The ped trach did not go in smoothly. He has also been coughing a lot since the new trach. Could this longer length be irratating him? The x-ray indicated everything was fine, but I just don't know. It seems that alot of your kids that are bigger than Zachary still have the neos in?
I am so confused.
__________________
Mom to a very happy baby born at 26 weeks. Trach, vent and G-tube because of severe BPD. Decannulated Feb. 2013.
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02-06-2012, 03:35 PM
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Member
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Join Date: Dec 2011
Location: Connecticut
Posts: 99
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Caleb Bled after his last Bronch, it was while we were still in the recovery room and he had a plug that had some blood in it. Our Ent got it out and scoped him and said its normal to bleed after a Bronch , they give them a med to dry up the secretions and they can get too dry and can bleed. It was only momentarily and didnt happen again.. I would call the ENT back and make sure this is normal..
__________________
Mom to Aven, healthy as anything, 5 and Caleb ,born 39 weeks,9.9.11, Trach, Gtube,Nissen,10.6.11, Mandibular distraction 8.8.11,tonsils/ adenoids 2/27/13, DECANNED 4/18/13!!no official diagnoses,profound hearing loss in left ear,cardiac abnormalities,extra T4 vertebrae. Pierre Robin Sequence
http://mycalebslife.blogspot.com
"For you created my inmost being; you knit me together in my mother's womb.. I am wonderfully made." Psalm 139:13-14
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02-06-2012, 03:37 PM
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Junior Member
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Join Date: Jul 2010
Location: SPAIN
Posts: 67
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Hi.. good that Zachary had only 30% of his airway blocked. I would ask if they could inject steroids directly to the granuloma we've been told that it is a good way to make granulomas disappear besides by using steroids topically there arenīt any major side effects.
Last bronchoscopy we got blood out of David trach for a couple of days.
David is 2 years old now and still uses neo trachs (4). He doesnīt tolerate the pediatric size it might be related to the fact that his trach is positioned in the lower part of his neck.
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Victor & Elo. David's dad. 12/13/09.Former 25wkr. Cochlear implant for hearing (waiting for 2nd ear...). Glottic/subglottic stenosis. Trached 06/10. Moderate reflux. Eating per mouth.Decanulated 24/10/12
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02-06-2012, 10:09 PM
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Member
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Join Date: May 2011
Location: West palm beach
Posts: 578
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The longer trach could absolutely be bothering him. I would change it, ASAP. Harrison has had 2 bronchs and has not bled with either one, but I wouldn't be surprised if some kids do bleed afterwards. Honestly though, I bet the PED trach is an irritant. His airway may not be long enough for it.
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 SUSAN-mom to Harrison, born full-term(11/1/10) with an undiagnosed congenital diaphragmatic hernia (CDH), hypoplastic right lung (caused by hernia), trached at 4 months, g-tube and fundo at 6 weeks. Home in March 2011. Weaned completely off of the vent in July  Wearing PMV 24/7, 02 at night, failed decannulation in October. Hoping for better results next time!
www.caringbridge.org/visit/harrisonsnow
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02-07-2012, 12:05 AM
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Member
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Join Date: May 2011
Location: Chicagoland
Posts: 537
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Aldo bleeds after every broch but he has the granuloma removed every single time. That could be the cause of Aldo's bleeding and not necessarily the bronch. You mentioned blood and tissue. Maybe the granuloma is starting to detach and that could be the source of the tissue and therefore, the bleeding!
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 Ana, mom to Aldo. Full term on 10/10/2010. Congenital Anterior Glottic Web & Subglottic Stenosis. 10/29/2010 Single stage LTP; web removed. Reconstruction surgery was a success but Aldo developed edema below the vocal chords and continued struggling to breath. Tracheostomy on 04/01/2011. Eats by mouth. High blood pressure resolved (it was probably due to hard breathing).
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02-07-2012, 12:26 AM
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Senior Member
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Join Date: Feb 2007
Location: Seattle WA
Posts: 6,484
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I think typically if you see blood due to a bronch it would be there right away, not a few days later. I agree most likely the longer trach. If it's too long and he coughs it could be scratching the trachea. Is the nurse supposed to make that call? I've only ever heard of the ENT being the one to upsize. Ainsley wore a Neo sized trach until she was 2+ and even then it caused a problem when she was ill up until she was about 3 or so. And she wasn't small....always in the 90% + range for height.
__________________
SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery).
Blog Link: http://ainsleyrae.blogspot.com/
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