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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

10-24-2011, 01:54 PM
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Member
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Join Date: Dec 2009
Location: Indiana
Posts: 352
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BD Published Lit from Cincinnati Childrens
This was published in May 2011. I don't have access to the site, but the abstract is available.
Pureed by Gastrostomy Tube Diet Improves Gagging and Retching in Children With Fundoplication
Scott Pentiuk, MD1,2
Therese O’Flaherty, RD1,3
Kathleen Santoro, RD1,3
Paul Willging, MD1,4
Ajay Kaul, MD1,2
1Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, Ohio
2Division of Pediatric Gastroenterology, Hepatology and Nutrition
3Department of Nutrition
4Division of Pediatric Otolaryngology, Cincinnati Children’s Hospital Medical Center, Cincinnati, Ohio
↵Scott Pentiuk, Cincinnati Children’s Hospital Medical Center; Division of Pediatric Gastroenterology, Hepatology and Nutrition; 3333 Burnet Avenue, ML 2010, Cincinnati, OH 45229-3039; e-mail: Scott.Pentiuk@cchmc.org.
Abstract
Background: Children with feeding disorders requiring Nissen fundoplication may develop gagging and retching following gastrostomy feedings. We developed a “pureed by gastrostomy tube” (PBGT) diet in an attempt to treat these symptoms and provide adequate nutrition and hydration. Methods: Children post– fundoplication surgery with symptoms of gagging and retching with gastrostomy feedings were selected from our interdisciplinary feeding team. An individualized PBGT diet was designed to meet the child’s nutrition goals. The child’s weight gain was recorded at each follow-up visit. A telephone survey was performed to determine parents’ perceptions of the child’s symptoms and oral feeding tolerance. Results: Thirty-three children (mean age, 34.2 months) participated in the trial. Average weight gain on the PBGT diet was 6.2 g/d. Seventeen children (52%) were reported to have a 76%–100% reduction in gagging and retching. Twenty-four children (73%) were reported to have a ≥50% decrease in symptoms. No child had worsened symptoms on the PBGT diet. Nineteen children (57%) were reported to have an increase in oral intake on the PBGT diet. Conclusions: A PBGT diet is an effective means of providing nutrition to children with feeding disorders. In children post–fundoplication surgery, a PBGT diet may decrease gagging and retching behaviors.
Received January 20, 2010.
Accepted April 24, 2010.
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Mom to Micah- born 8/31/2009- Diagnosed with Cervical/Facial Lymphatic Malformation in utero. Trach/G-tube at 5 weeks.
www.littlemicah.blogspot.com
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10-26-2011, 10:33 PM
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Junior Member
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Join Date: May 2011
Location: Delaware
Posts: 73
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Interesting…..I want to look into it further, here lately Katie has so much gagging after feeds.
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 Susan, Mom mom (aka grandmom) to Tyler, 12/2006. Alexis, Brianna, and Katie (trach-4 months old, missing/fused ribs-VEPTR surgery) 10/2008
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10-27-2011, 03:36 PM
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Join Date: Aug 2009
Location: Pennsylvania
Posts: 473
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Thank you so much for sharing this. Cillian gags and retchs (i have posted about this previously). We did start on the Prevacid Solutabs which have decreased it by half, but maybe this will help to totally get rid of the gagging.
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 Kara. Mom to Bailey (3/14/2006), Mason Premie (09/17/2007), and Cillian - Digeorge Syndrome, Tetralogy of Fallot, ASD, VSD, Pulm artresia, non functioning pulm valve (replaced with human homograft valve 8/2011), mild tricuspid valve failure (repaired 8/2011), tracheostomy, g tube, nisson fundo, double hernia surgery, submucosal cleft palate, aortic stents, pulm hypertension, tracheobronchial malacia born 1/10/2009. Three sweet angels.
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10-27-2011, 03:51 PM
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Member
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Join Date: Aug 2009
Location: Pennsylvania
Posts: 473
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I hope this works, i tried to attach the document in its entirety.
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 Kara. Mom to Bailey (3/14/2006), Mason Premie (09/17/2007), and Cillian - Digeorge Syndrome, Tetralogy of Fallot, ASD, VSD, Pulm artresia, non functioning pulm valve (replaced with human homograft valve 8/2011), mild tricuspid valve failure (repaired 8/2011), tracheostomy, g tube, nisson fundo, double hernia surgery, submucosal cleft palate, aortic stents, pulm hypertension, tracheobronchial malacia born 1/10/2009. Three sweet angels.
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10-30-2011, 01:04 AM
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Senior Member
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Join Date: Jan 2007
Location: Colorado
Posts: 3,979
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This is awesome!  Thank you for sharing. Ayden also has a fundo and we did the BD in hopes it would be the miracle cure... although it wasn't for us, we did see about a 50% reduction, but more so he looked less medically fragile and more like a kid. Even his pulm commented that he looked much healthier after he was just on it for a few months.
I am definitely passing it on to his pulm and ped as well as his RD. 
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Dawn

former 26 weeker -- 4/2006 -- trach, g-tube, nissen; came home 1/07 vented 24/7; Successfully decanned 8/8/2008 - 
Follow decan at: http://sleepy-dogs.blogspot.com/
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