Pediatric Tracheostomy Home Care Guide at Amazon.com


Go Back   Aaron's Tracheostomy Message Board > Pediatric Tracheostomies
Reload this Page naked neck club!!!!!!

Pediatric Tracheostomies For parents and caregivers of children with tracheostomies.  Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

Reply
Page 1 of 2 1 2 >
 
Thread Tools Display Modes
  #1  
Old 09-22-2011, 04:36 PM
k181192652319119's Avatar
k181192652319119 k181192652319119 is offline
Member
  
Join Date: May 2010
Location: Maryland
Posts: 226
Default naked neck club!!!!!!
So yesterday Maddy joined the naked neck club!!!! She was supposed to go in for a T&A and a bronchoscopy. Once the Dr got in there she decided to leave the tonsils take most of the adenoids and during the bronchoscopy the Dr found Maddy had a large granuloma that was blocking 80+% of her trachea. The Dr not sure how she ever passed her sleep study in the first place. But with that said I feel so bad. I had noticed a few months ago that it looked like Maddy might be retracting a little bit but when I said something to my husband he said it was just me being pessimistic. Oh well it all worked out in the end. The best part is that they were going to take her trach out at some point in the late afternoon in the PICU after Maddys surgery but as they were waking her up from anesthesia she pulled out her own trach so the dr just left it out ;-)
__________________
Kate, mother to Madalynn born full term 5/1/10, laryngomalacia and Left Vocal Cord Paralysis (resolved 1/2011), failed supraglottoplasty 5/17/10, trach 5/28/10, g-tube 6/30/10, home for the first time 7/3/10 decannulated 9/21/11
http://www.youtube.com/watch?v=nUijY...lUI&feature=BF
http://www.youtube.com/user/theranso.../0/CJthuhZ3y3U
Reply With Quote
  #2  
Old 09-22-2011, 05:49 PM
Caleb'sMom Caleb'sMom is offline
Member
  
Join Date: Jan 2011
Location: Virginia
Posts: 450
Default
awesome!!! congrats. how does it feel?
__________________
Mom to Caleb- born 9/7/2010 at 40 weeks, VACTERL association, thoracic insufficiency syndrome/restrictive lung disease related to scoliosis and missing/fused ribs, trach and G tube on 12/21/2010, home for the first time on 1/12/2011 , VEPTR implant 1/2012, working on being vent free
Reply With Quote
  #3  
Old 09-22-2011, 07:42 PM
glowingpurpleaura's Avatar
glowingpurpleaura glowingpurpleaura is offline
Member
  
Join Date: Nov 2010
Location: Australia
Posts: 580
Default
YAY well done!
__________________


Life is not measured by the number of breaths we take, but by the moments that take our breath away.
Mum to an ex 24wk prem now 4 yrs old with Chronic lung disease, chryocid web, immobile vocal cords and vision impaired from ROP. Decanned 10th March 2011 , plan to repeat LTR due to body reabsorbing graph, date unknown
Reply With Quote
  #4  
Old 09-22-2011, 08:19 PM
IzzyB IzzyB is offline
Member
  
Join Date: May 2011
Location: Orlando, FL
Posts: 450
Default
Congrats!!!
Reply With Quote
  #5  
Old 09-22-2011, 09:11 PM
Cillian's Mom's Avatar
Cillian's Mom Cillian's Mom is offline
Member
  
Join Date: Aug 2009
Location: Pennsylvania
Posts: 473
Default
Wonderful news!!!!!!!!!
__________________
Kara. Mom to Bailey (3/14/2006), Mason Premie (09/17/2007), and Cillian - Digeorge Syndrome, Tetralogy of Fallot, ASD, VSD, Pulm artresia, non functioning pulm valve (replaced with human homograft valve 8/2011), mild tricuspid valve failure (repaired 8/2011), tracheostomy, g tube, nisson fundo, double hernia surgery, submucosal cleft palate, aortic stents, pulm hypertension, tracheobronchial malacia born 1/10/2009. Three sweet angels.
Reply With Quote
  #6  
Old 09-22-2011, 09:23 PM
SammyJo SammyJo is offline
Member
  
Join Date: Apr 2011
Location: Lawrence, KS
Posts: 262
Default
Wonderful! Way to go Maddy!
__________________

Alex, mom to Samantha born 38 weeks on March 7th, 2011 with Congenital Nasal Pyriform Aperture Stenosis, trached 3.30.11. Grade I Congenital SGS, diagnosed 11/30/11. Also mom to big brother Luke (3).
Reply With Quote
  #7  
Old 09-22-2011, 09:32 PM
Sweet Harrison's mommy Sweet Harrison's mommy is offline
Member
  
Join Date: May 2011
Location: West palm beach
Posts: 578
Default
so exciting!!! Congrats
__________________
SUSAN-mom to Harrison, born full-term(11/1/10) with an undiagnosed congenital diaphragmatic hernia (CDH), hypoplastic right lung (caused by hernia), trached at 4 months, g-tube and fundo at 6 weeks. Home in March 2011. Weaned completely off of the vent in July Wearing PMV 24/7, 02 at night, failed decannulation in October. Hoping for better results next time!
www.caringbridge.org/visit/harrisonsnow
Reply With Quote
  #8  
Old 09-22-2011, 09:42 PM
mommom_of_4 mommom_of_4 is offline
Junior Member
  
Join Date: May 2011
Location: Delaware
Posts: 73
Default
Wow! What wonderful news!
__________________
Susan, Mom mom (aka grandmom) to Tyler, 12/2006. Alexis, Brianna, and Katie (trach-4 months old, missing/fused ribs-VEPTR surgery) 10/2008
Reply With Quote
  #9  
Old 09-22-2011, 09:46 PM
Linnae's Mom's Avatar
Linnae's Mom Linnae's Mom is offline
Member
  
Join Date: Mar 2010
Location: Wheaton, IL
Posts: 427
Default
Celebrating with you...congrats!
__________________
JENNIFER-mom to Linton (11), Gideon (7), and Linnae (3-born 5 wks early on 3-22-08), PRS, Trach April 08, VSD-repaired Sept. 08, Ear Tubes-Jan 09, Cleft Palate-repaired May 09 (severe complications with tongue swelling-still ongoing issue), Jaw Distraction-June 09, Jaw Distractor Removal-Nov 09, Adenoidectomy-Feb 10, Reflux-resolved, Discharged from P.T. and O.T...hoping for decan sometime soon! http://www.caringbridge.org/visit/linnaeellis1
Reply With Quote
  #10  
Old 09-23-2011, 02:56 AM
JWorthington's Avatar
JWorthington JWorthington is offline
Senior Member
  
Join Date: Dec 2004
Location: England
Posts: 10,932
Default
congratulations! doing the happy dance for you
__________________

Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14).
I am first and foremost a child
Reply With Quote
Reply
Page 1 of 2 1 2 >

« Previous Thread | Next Thread »

Thread Tools
Display Modes
Linear Mode Linear Mode

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
vB code is On
Smilies are On
[IMG] code is On
HTML code is Off


All times are GMT -5. The time now is 01:27 AM.

Contact Us - Aaron's Tracheostomy Page - Archive - Top

Disclaimer: The information and resources on Aaron's Tracheostomy Page, Aaron's Tracheostomy Message Boards and the Trachties Listserv are for educational purposes only. This web site and its resources are not engaged in rendering medical, pharmaceutical nor therapeutic advice or professional services. The information provided through these pages, message boards and listserv or any links from this web site should not be used as a substitute for professional advice by qualified doctors and/or therapists.

Powered by vBulletin® Version 3.6.5
Copyright ©2000 - 2013, Jelsoft Enterprises Ltd.