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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
09-22-2011, 08:30 AM
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Parent volunteers needed for on-line survey
Dear Parents,
Rachel Joseph, a doctoral student at Duquesne University is inviting you to participate in a research study. If you care for your child with a tracheostomy and your child is less than three years of age, you are invited to participate in a study on 'Quality of Life of Parental caregivers of Children with a Tracheostomy' by clicking the link provided. https://www.surveymonkey.com/s/W7ZQH3Z
__________________
Cindy - Mom to Aaron (age 19), trached for 4 years, subglottic stenosis, ADHD, learning disability, former 26 week preemie and identical twin to Eric (age 19), spastic quad CP, moderate MR, seizure disorder; Anthony (age 19), spastic quad CP, g-tube, seizure disorder, cortical vision impairment, profound MR; and Natasha (age 6) CP, cortical blindness, seizure disorder, profound MR, shunt, g-tube.  Home Page: http://www.bissells.com 
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#2
09-23-2011, 08:59 AM
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Just took the survey. Only took 5 minutes
 Glad to help in any way!
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 SUSAN-mom to Harrison, born full-term(11/1/10) with an undiagnosed congenital diaphragmatic hernia (CDH), hypoplastic right lung (caused by hernia), trached at 4 months, g-tube and fundo at 6 weeks. Home in March 2011. Weaned completely off of the vent in July Wearing PMV 24/7, 02 at night, failed decannulation in October. Hoping for better results next time!www.caringbridge.org/visit/harrisonsnow
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#3
09-23-2011, 10:50 AM
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Quote:
Thanks Susan, Yes, I think it is important to note that the survey does not take very long for most people, maybe an average of 15 minutes. I'm guessing they estimated the time on slow readers and that Susan is a speed reader 
__________________
Cindy - Mom to Aaron (age 19), trached for 4 years, subglottic stenosis, ADHD, learning disability, former 26 week preemie and identical twin to Eric (age 19), spastic quad CP, moderate MR, seizure disorder; Anthony (age 19), spastic quad CP, g-tube, seizure disorder, cortical vision impairment, profound MR; and Natasha (age 6) CP, cortical blindness, seizure disorder, profound MR, shunt, g-tube. Home Page: http://www.bissells.com
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#4
09-23-2011, 10:19 PM
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Took me a little longer, but no more than 15-20 minutes.
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 Alex, mom to Samantha born 38 weeks on March 7th, 2011 with Congenital Nasal Pyriform Aperture Stenosis, trached 3.30.11. Grade I Congenital SGS, diagnosed 11/30/11. Also mom to big brother Luke (3).
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