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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
05-05-2004, 04:29 PM
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I am sorry to burden everyone with this message.
Jenny, could you please send me a private email. I was having some computer problems at home and lost your email. I have some questions regarding a nurse that I believe you used. Thanks.
__________________
Mom to Hannah, born 12/5/2000 with Congenital Central Hypoventilation Syndrome. Trached at 3 weeks, vented during asleep hours only (Since March 2004). Along with her brother, Justin, they are the joy of my life. 
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#2
05-06-2004, 10:01 AM
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Hi Karen,
We are also on the fritz with the computer, so I've been off and on. I will send you an e-mail now. Jenny
__________________
Jenny, mother of Benjamin, born 37 weeks 5/2/02, 2 cardiac arrests in first week of life, trached/G-tube/Fundo at 4 wks, ASL , page 19, St. Louis, Decannulated 4/25/05!! G-tube removed 5/15/06. Tethered spinal cord, likely diagnosis of Dystroglycanopathy. Also mother to Alex 35 wkr born 6/11/05. http://www.geocities.com/benjaminashaffer/index.html
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