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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
08-25-2011, 12:31 PM
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bacteria and more bacteria!
2.5 weeks ago Caleb had a "routine" trach aspirate at his new pulminologist. he was growing Pseudo and hermophalis (spelling?). They treated both based on the amount that grew and the fact he had recently had some colored secretions. otherwise, he hadn't had horrible symptoms.
He was fine about 1.5 weeks later. Sunday, he had yellow secretions again so I took in another speciment- this time he is growing E. Coli (found in the lower GI tract usually=poop) and some other crazy bacteria that is found commonly in dirt from the Middle East (we recently moved onto a military base where deployments happen a lot) What is going on!!! We try to be so clean although this has made me brainstorm in ways we can improve. Did these new bacteria grow because they had the opportunity with the first set of bacteria being killed by the antibiotics or is it just our luck that we got a double wammy! I'm so paranoid now. Caleb has def. been out and about more. What's the balance between doing "normal" things with him and staying away from these bugs?! We also hvae had a lot of different people in and out of the hosue lately but we hold tehm to the same standards of cleanliness or at least try. Our doctors said this is kind of just par for the course with trached kids.
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 Mom to Caleb- born 9/7/2010 at 40 weeks, VACTERL association, thoracic insufficiency syndrome/restrictive lung disease related to scoliosis and missing/fused ribs, trach and G tube on 12/21/2010, home for the first time on 1/12/2011 , VEPTR implant 1/2012, working on being vent free
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#2
08-25-2011, 01:34 PM
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I am no means an expert on this, but if the body has sufficient "good" bacteria, then "bad" bacteria isn't so bad.
Have you considered probiotics, pharmacuetical grade? I say this as our own stash is sititng in teh fridge, unused... 
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 Mom to Paul, 3 years old, vented due to central apnea, very severe Chiari II, sacral-level spina bifida, g-tube, autonomic dysregulation with significant temp dysregulation, hypertension. Beautiful, happy child.
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#3
08-25-2011, 02:20 PM
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If you took a trach aspirate every week you'd grow a different bacteria every time. Trachs are bacteria breeding grounds.
Unless the baby is seriously immunocompromised I say take the baby out and about! You will eventually lose the trach, but you can't get back those lost years--developmentally. My son had funky colored secretions the entire 3 1/2 years he was trached. We only treated him if he had a fever higher than 100 and acted sick. Each doctor is different. Some will hospitalize trach kids and prescribe antibiotics for any growth, and some do not. I'd go with your gut but try not to stress out too much. You will know if he is truly sick. Keep him out in the world around people. You will both benefit 
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Kristy Nathan is 7! Trached at 2 hours old--laryngeal atresia. Double stage LTP 5/26/06, double stage LTP 1/23/09 and single stage LTP 4/21/09. Airway has restenosed, but we're still trach free 9/2012. Ding dong, the trach is gone!! Last edited by LKN : 08-25-2011 at 02:23 PM.
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