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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

08-15-2011, 12:13 PM
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Junior Member
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Join Date: Dec 2010
Location: Minneapolis, MN
Posts: 65
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Tape issues!
This will probably sound a little uh.. weird..
Jayme got decannulated! But now I'm having a hard time finding something to hold on her dressing  We've tried the bandaid tape, paper tape, cloth tape - All are destroying her little neck. Is there anything without adhesive that I could use?!
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www.caringbridge.org/visit/jaymeswenson Password: October

CHD:VSD [Repaired], Left Vocal Chord paralysis [resolved!]; GERD, Hypotonia/Joint Laxity, Possible underlying neurological dysfunction [Cleared]
GJMic-Key.
****DECANNULATED 8/10/11@19:20****
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08-15-2011, 12:19 PM
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Join Date: Jul 2009
Location: Iowa
Posts: 466
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Congrats!
I have no idea if this would work...but could you put that gauzy Johnson's hurt-free wrap around her neck and then tape that? (Kind of like a trach tie, I guess)?
Might not be tight enough to hold the dressing, though.
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08-15-2011, 01:46 PM
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Join Date: Aug 2004
Posts: 840
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Tegaderm. It's a one-piece, sterile, super-sticky dressing coverage that is typically used with central lines like PICCs and ports.
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08-15-2011, 02:52 PM
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Join Date: Apr 2010
Location: Indiana
Posts: 87
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Congrats!
We used trach ties fastened to gauze at first. Tape also irritated Ezra's neck and tegaderm failed all together for him. But I've heard plenty of people say it has worked for them. His stoma is now a pinhole and although he still breathes out of it we keep it uncovered because it was too much of a hassle.
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08-15-2011, 03:00 PM
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Senior Member
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Join Date: Dec 2008
Location: ARIZONA
Posts: 1,961
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I used bandaids.
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08-15-2011, 04:11 PM
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Junior Member
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Join Date: Dec 2010
Location: Minneapolis, MN
Posts: 65
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She is allergic to tagaderm but I will definitely try trach ties!! THANK YOU!
__________________
www.caringbridge.org/visit/jaymeswenson Password: October

CHD:VSD [Repaired], Left Vocal Chord paralysis [resolved!]; GERD, Hypotonia/Joint Laxity, Possible underlying neurological dysfunction [Cleared]
GJMic-Key.
****DECANNULATED 8/10/11@19:20****
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08-15-2011, 04:37 PM
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Junior Member
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Join Date: Jul 2011
Location: CA
Posts: 20
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Congrats! All these suggestions sound great to me, but if you wanted to try an adhesive in the future, I'd suggest medipore soft surgical tape. I'm allergic to most tapes out there, and sensitive to tegaderm for my portacath, but the medipore tape works great for me! No skin breakdown so far. 
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08-25-2011, 09:56 AM
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Junior Member
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Join Date: Mar 2011
Location: KY
Posts: 20
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we are having the same issues. Our son was also just decan and is allergic to tegaderm and various other tapes. I've tried using trach ties but he seems to pull the gauze out from under it and its really not quite low enough to cover the site. I've tried about every band aide out there and still has redness around his neck. The only thing that seems to work is gauze over the site and then a piece of duoderm. I hate using this because its not meant to be removed daily so its hard on the skin but its not breaking him out. Ugh...
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08-25-2011, 07:22 PM
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Join Date: Mar 2008
Location: Pennsylvania
Posts: 658
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Medline makes 2 x 2 bordered gauze. They have been GREAT. Its super gentle on Natalie's skin and we used it a lot when she first was decanned until her skin got a bit more tough so to speak. Its a bit pricey, but you can get ok deals online. It was by far the best thing we got for her because she got a rash from everything. CVS also makes a hypoallergenic band aide but we need to use two if covering her stoma.
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 [SIGPIC]Karen----Mom to Faith (6), and Natalie born 10/12/07 @ 25 weeks, 1lb 3oz. Came home 6/10/08 with a trach, vent, nissen with g-tube, and pda ligation. BPD, reflux, subglottic stenosis. Off the vent!!!! Double stage ltp 5/10. Decan 5/11/11!
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08-26-2011, 11:30 PM
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Join Date: Nov 2010
Location: Australia
Posts: 580
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I"m naughty t's stoma is still open and we use nothing, he is rather allergic to tapes so i just gave up, seems to be no harm done and his doc hasnt questioned it
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Life is not measured by the number of breaths we take, but by the moments that take our breath away.
Mum to an ex 24wk prem now 4 yrs old with Chronic lung disease, chryocid web, immobile vocal cords and vision impaired from ROP. Decanned 10th March 2011  , plan to repeat LTR due to body reabsorbing graph, date unknown
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