Ainsley's 7/25/11 Laryngoscopy Results

[SammyJo]

Sorry you didn't get the clear answers you were looking for. I can't imagine how difficult it is after 5 years to continue to be patient and wait for the possibility of more changes. Before I read your last post, I was thinking if there was a way to determine what is causing the obstruction while she slept, that would surely point you in the direction of a more concrete solution. So many kids on this cite have OSA, you would think there would be a way to view the airway while asleep. Especially if it's a matter of decanning.
I do agree with others on getting another option. Easier said then done, because I have said the same thing with regards to maintaining a good relationship. I hope you get more info before the fall/winter, I don't know if I'd have the patience to wait 3 months for an appt, but if she sees one of the best, I guess it's the price you pay. Look forward to updates!

[Kate]

Sorry you didn't get a cut and dry answer. I agree with the others on giving Cinci a chance. I understand though about keeping in good graces with your dr...he is local and you will need him at some point. Never good to burn bridges.

As for outgrowing. I know Mitchell's case is very very different but they felt that at 5 if he hadn't outgrown his issues...he wouldn't. I felt like we were in a holding pattern with the wait and see. (that's where the 2nd opinion saved us)

Sometimes scopes just leave you with more questions.

[Ainsley's Mom]

Originally Posted by Kate

Sorry you didn't get a cut and dry answer. I agree with the others on giving Cinci a chance. I understand though about keeping in good graces with your dr...he is local and you will need him at some point. Never good to burn bridges.

As for outgrowing. I know Mitchell's case is very very different but they felt that at 5 if he hadn't outgrown his issues...he wouldn't. I felt like we were in a holding pattern with the wait and see. (that's where the 2nd opinion saved us)

Sometimes scopes just leave you with more questions.

Yeah, all along I have felt like 5 was the magic age. She's been as big as a 5 year old for awhile. Doesn't actually turn until October. I think it would have happened by now. I think she might outgrow them perhaps at age 13 or more, but that is a long time to wait. Our doc gave the okay to go to Cincinnati. So I'm going to start checking into arrangements, perhaps we'll go next spring/summer. I think it's too late to get in before September and she always gets a virus when she first goes to school. With all the tests they have to schedule hence the wait. And that means a bit more time with the proper reflux meds. I'm thinking also about asking for a nasal steroid again. She still has some left over swelling. I'd love to get an impedance probe test to see if it is actually 100% stopped from the fundo or not. And that they don't do in Seattle.