Hi all. My 3 year old daughter is scheduled to have a tracheal resection in a few weeks. She was born 3 months premature and has significant chronic lung disease. She was intubated from day 1 and then so was intubated trach'd at 6months. She got the trach out a year ago but the stoma never closed and a bronchoscopy showed damage to her trachea - most likely a result of the medical interventions to keep her alive in the early days.
She has been doing amazingly well over the past 6 months, walking, talking, eating and drinking and making friends....all things she has struggled to do until recently and has worked so hard to achieve. So it breaks my heart that she needs such an invasive surgery
Her surgeon mentioned that one of the risks of this surgery is damaging the vocal chord nerves which would effect her talking and swallowing. Has this happened to anyone? I am also particularly concerned about pain management as her surgeon mentioned wanting to wake her up within hours of the operation.
I would appreciate anyone willing to share their experiences with me.
Many thanks, in advance,
Meagan, mom to Violet